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PKU and HyperPHE

  • 01-05-2011 12:52pm
    #1
    Orlie
    Registered Users, Registered Users 2 Posts: 61 ✭✭


    Hi.

    I was diagnosed with a mild form of PKU at birth. My parents took my bloods once a month and they were always fine. I haven't done this in about 10 years though...

    At the time there was NO information available so I now believe the type I have must be the milder one as I have Never been on a diet or had any problems...

    I want to start looking after it though as it is careless of me not to!!!

    Where do I start and are there any clinics near Kerry does anyone know?

    I would appreciate any info on websites, forums etc you would recommend also!
    Tagged:


Comments

  • #2
    xmas09
    Registered Users, Registered Users 2 Posts: 13 ✭xmas09


    hi Orlie,

    you need to get in touch with the metabolic unit in temple street, they would have looked after you as a child so probably have you on the books since back then. (phone no. 01 8784317)

    theres a few forums, most are uk or us, theres a good australian one PKUtree.com but if you google them you should get find them

    good luck


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