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Would like to know many born with bladder exstrophy in Ireland?

catherine flaherty · 2011-04-02 21:46:21

Hi All, Just recently joined this and would like to know is there many in Ireland with this very rare disorder. Im 22 years old and have been in and out of hospital since i was 4 weeks old and was diagnosed with the disorder, i have mitrofanoff of 5 years and doing well with it but now have been diagnosed with CKD (Chronic…

02-04-2011 9:46pm

#1

catherine flaherty

Registered Users, Registered Users 2 Posts: 11 ✭

Join Date: April 2011

Posts: 10

Hi All,

Just recently joined this and would like to know is there many in Ireland with this very rare disorder.

Im 22 years old and have been in and out of hospital since i was 4 weeks old and was diagnosed with the disorder, i have mitrofanoff of 5 years and doing well with it but now have been diagnosed with CKD (Chronic Kidney Disease) and would like to know many in Ireland with bladder exstrophy develop Kidney disease?

Thanks guys.

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