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Post Viral Fatigue Syndrome

  • 01-06-2009 4:18pm
    #1
    kig
    Registered Users, Registered Users 2 Posts: 264 ✭✭


    I was diagnosed with Mumps in December (which ended up being a wrong diagnosis), struggelled with it for a few months, going back & forth to the GP. Eventually he refered me to a specialist in Tallaght Hospital, believing that I had Lymphoma, after a couple of months and countless tests, scans etc., they siad that it wasn't lymphoma but probably PVFS, which I believe is the same or similar to ME & CFS. As you can imagine at this stage I have lost all faith in my GP. Could anyone recommend someone in South Dublin (Firhouse/Tallaght/Dundrum) who may be able to help me, or suggest what my next step should be?


Comments

  • #2
    The_Conductor
    Moderators, Society & Culture Moderators Posts: 32,286 Mod ✭✭✭✭The_Conductor


    I had to look this up: http://en.wikipedia.org/wiki/Post-viral_fatigue_syndrome

    According to the WHO its a neurological disorder. Accordingly- you should seek a referral to a neurologist. I am not aware of any Irish neurologists specialising in this area (but am open to correction).


  • #3
    kangaroo
    Registered Users, Registered Users 2 Posts: 651 ✭✭✭kangaroo


    kig wrote: »
    I was diagnosed with Mumps in December (which ended up being a wrong diagnosis), struggelled with it for a few months, going back & forth to the GP. Eventually he refered me to a specialist in Tallaght Hospital, believing that I had Lymphoma, after a couple of months and countless tests, scans etc., they siad that it wasn't lymphoma but probably PVFS, which I believe is the same or similar to ME & CFS. As you can imagine at this stage I have lost all faith in my GP. Could anyone recommend someone in South Dublin (Firhouse/Tallaght/Dundrum) who may be able to help me, or suggest what my next step should be?

    After 6 months of PVFS-type symptoms, you would generally be considered to have CFS or ME now.

    The timeframe is somewhat abitrary but comes from the CDC's definitions, which were originally designed for research (the feeling was that if you had to short a period, some people might spontaneously get better during the course of a study which might mess things up). I'd personally anyone with PVFS follow the sort of advice given for ME or CFS along time before 6 months.

    ME and CFS like PVFS are classified by the WHO as neurological conditions (all under the same code, G93;3, again showing they're basically synonyms (although some people's ME or CFS can follow other things also, it seems). However, no neurologists specialise in the condition in Ireland.

    The Irish ME/CFS Association (01-2350965 info@irishmecfs.org) gets information on GPs and other doctors from members so might be of us with regard to doctors' query as well as in general.


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