Finally something is happening.............. I have an appointment with Prof. O'Donoghue in the Mater Private on the 25.09.07, Thank God!! i will just sit by and wait for this now and chase everywhere for my files and results of tests!!
Just thought i would let you all know!!!
good luck Liz, you might want to consider something like Ensure Plus HP drinks (ask your doctor) form the chemist to keep you ticking over until they decide on a treatment. Strawberry, bananna, vanilla arent so bad.
You know I think that we should start some sort of a petition to get Crohn's medications included on the longterm illness scheme- the 85 a month is expensive, especially when you don't have much in the way of a disposable income.......
I heard somewhere (Cant quite remember where) that there has been some talk of this happening.
I really dont understand why it wouldnt be part of the scheme. I mean it is a long term illness, pretty severe for some. Wheres the problem?
what about the http://www.iscc.ie/ they had a talk about Crohns & UC down in Limerick last year I think, informative.
who would we lobby about getting it on the list though, any one have any media/political connections?
smccarrick wrote: »
What I am quite worried about is the pharmacies no longer dispensing things on the E85 a month scheme from the end of the month- my Imuran will be over 450 a month, and you can only claim back an excess from the HSE on a quarterly basis- so its going to be very very pricey When you factor in other medications- almost a third of my after tax income will be accounted for. :mad: