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Neurofibromatosis (NF1/NF2)

  • 26-01-2007 11:45am
    #1
    Axl
    Closed Accounts Posts: 31 ✭


    Hi,

    Not sure if this is in the correct board - mods please move if not.

    I have been referred to a specialist as I have had some bumps (lypomas) for years, however recently some have become sore. I also suffer from skin burning sensation, which might be related.

    I am booked in for surgery (GA) in a two weeks time as there are too many for LA surgery.

    Reading about NF, many of the symptoms / items are similar and I am sure this is correct. I would be curious to know if there are any other NF sufferers out there or if you know much/anything about NF.

    I have some concerns around the fact that all lumps will be removed, but that I have not been for a scan to see where some of the smaller ones are. I am also keen to try and work out if its NF1 or NF2 as I seem to have bits from both.

    Anyone?

    I am also looking at this:

    http://www.nfaireland.ie/

    and will contact them in due course.

    Thanks.


Comments

  • #2
    tbh
    Closed Accounts Posts: 15,914 ✭✭✭✭tbh


    you are indeed in the right place Axl, but remember we can't give you medical advice here, just "dealing with it" advice.

    Good luck with the surgery, and let us know how you get on. Is that GA as in Georgia? One of my favourite places :)


  • #3
    DrIndy
    Registered Users, Registered Users 2 Posts: 3,461 ✭✭✭DrIndy


    GA = general anaesthetic


  • #4
    tbh
    Closed Accounts Posts: 15,914 ✭✭✭✭tbh


    DrIndy wrote:
    GA = general anaesthetic

    ain't my face red :o Mind you, gen. anaesthetic is pretty nice too!


  • #5
    mike65
    Closed Accounts Posts: 88,972 ✭✭✭✭mike65


    Night Nurse (mk 1) is better! :)

    Mike.


  • #6
    Axl
    Closed Accounts Posts: 31 ✭Axl


    Thanks all. Spoke to a friend that is a GP, he doesnt think its NF. Will wait and see after the surgery on Tuesday.


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