Im looking for some advice please. Was feeling really unwell a couple of weeks ago, general exhaustion and pins n needles in my hands so my Gp referred me to A& E and they diagnosed me with a bladder infection...anyhow have started to feel much better after taking meds. My GP contacted me yest and advised me that I have an under active thyroid. And he has put me on 100 mg og El (sorry know tabs begin with a E) for one mth and then is uppin the dose to 150mg..he said that my thyroid is completely gone!!
Anyhow as usual I left in total shock and didnt ask any questions....Im wondering do I have this as I dont really have a lot of the symptons....I joined Unislim five weeks ago and have lost 9.5 ibs when from what Ive read I am supposed to be putting on weight...will this happen when I start taking the tabs??? Im also worried about trying to conceive does it affect your fertility??
Any advice would be greatly appreciated as my head is in a bit of a spin at the mo.
Evie, if you do a search here there are some old threads about this that might be helpful but a few points:
- You should do some reading into an under active thyroid, what it means, what the blood tests look for etc. Unfortunately a lot of doctors in Ireland aren't very well informed so you should make yourself informed.
- Depending on the current level of your TSH it might be advisable to see an endocrinologist for more help
- Under active thyroid is an autoimmune disease and can be linked to others. A lot of sufferers tend to have coeliac disease also so it might be worth looking at this.
- In terms of weight - if your thyroid is under active you will have a tendency to put on weight easily so the fact that you have already lost some is great.
- on the dose you are on, doctors normally retest your blood before they will increase/decrease, so make sure this happens. You don't want to be on too high a dose as this has dangerous consequences.
My story: diagnosed in 2005, currently on 150mg Eltroxin Mon-Thurs and 200mg Fri-Sun. This is a trial dose as I'm still not feeling very well. I also have coeliac disease and am currently testing for adrenal fatigue as if left undiagnosed it means that the medication I'm taking wont do me any good. Its tough but easy to live with once you get the hand of it. When you're on the right dose for you, you will see a huge difference. But remember to get tested every 6 months to check the levels and become aware of what the results mean for you. The levels on the test are just standard levels, not gospel. For me, I do better when my TSH is between 0.5 and 1, although according to the standard levels this is too low. As for your question about fertility once your being treated properly there is no issue - when you do become pregnant you will need to get your bloods checked regularly as your level tends to change.
Other than that I would suggest:
- Although its utterly exhausting try to get as much exercise as possible
- A lot of people with under active thyroid tend to do well on a low carb diet
- Make sure you're getting all your vitamins. B12 is really important
If you need any other help, there are lots of people here, but feel free to PM me
That is weird. If you have an under active thyroid you should be gaining weight, I think.
An under active thyroid causes tiredness, dry skin, weakness... and yes, it does affect your fertility too.
I couldn't work out what kind of meds you're on from what you've written, but if your GP is changing the dosage every now and then and if he's testing your blood regularly, then you're probably taking levothyroxine or something like that. If you started losing weight after you started taking your tablets, then your thyroid is probably working properly now and you'll have to keep taking the tablets to keep the thyroxin level stable. You should not exceed the dosage prescribed by your GP as this would cause the opposite effect: an overactive thyroid, causing anxiety, stress, fertility problems and great weight loss.
An under active thyroid could seriously affect your fertility. Assuming you are a woman, hypothyroidism can cause difficulties for your ovaries to ovulate (i.e. release eggs). Low levels of thyroxin may cause irregular menstrual cycles, so if you do have those irregular cycles, it is probably because of your under active thyroid. During pregnancy, especially during the early stage, you should really keep an eye on your thyroxin level as it might affect your progesterone level. If your progesterone is low during pregnancy you might risk spontaneous abortion, known as miscarriage. So in case of pregnancy make sure you see your GP and you have your blood tested regularly.
But, as I said before, if you started losing weight after taking the tablets, then your thyroxin level is probably normal now. As for your thyroid being “completely gone”, I honestly can't imagine what happened! Did your GP say anything about autoimmune thyroiditis?
Hope that helped.
Tabhair aire dhuit féin.
Thanks for much for taking the time to reply, I rang my gp this morning and he was very dismissive and told me to kop on and start taking the tabs!! So ur mails have been me some clarification when he didnt!!
My tabs are called eltroxin- he has started me on 100mg and said I will prob be on that for a mth and has then upped my dose to 150mg to then have a blood test in 6 weeks, but when I rang him this morning he said if I want I can stay on the lower dose til I have my bloods done in 6 weeks. He then knocked me tho by saying my dosage at the end will prob be 200-250mg!! Im worried that Ive been mis-diagnosed as ive been feeling much better in the last two weeks. My tsh level was 45???
Altho Im 32 and not planning on trying to get pregnant for a few years I was very frightened to read that it can affect ferility but that seems to be only if it goes untreated. He said its a good sign that Im loosing weight by following low GI thru Unislim and to continue to do that and that I will probably loose more weight once I start the tabs and my dosage gets sorted out for me....I terrified of gaining weight as for the 1st time Ive found something that works for me and dont want to undo all the good work, but he said once I start the meds my chancing of getting pregnant and loosing weight will be increased!!
Its very frightening reading up on the net and it doesnt portray under active thyroid or Eltroxin in a very positive light.
Again many thanks for taking the time to reply.
Internet can be good and bad - so don't believe everything you read. A TSH of 45 is huge - no wonder you're feeling so much better now. Don't worry about how much meds you're on a day, if you feel better then its working.
As I have to echo what TBH said - get a new doc, this one is a joke!
Its never as bad as it first seems - I was the same as you when I was first diagnosed but now I feel much better informed and although not fully better I know what I need to do to get me there.
Hope you feel better soon
Looks like you caught it early before the symptoms you read about set in.
Let me just explain a little about it. The most common cause of hypothyroidism is something called "hashimotos thyroiditis". This is where your immune system mistakedly attacks the thyroid gland with antibody attacks which gradually distroy the thyroid gland. The result of this is that your thyroid cant produce sufficient thyroid hormones (t4, t3) ... ie. you're left with hypothyroidism. Hashimotos thyroiditis can be confirmed with a blood test to check if these antibodies are present in the blood but many doctors don't bother doing this as it makes absolutely no difference to the course of treatment.
"Hashimoto's typically involves a slow but steady destruction of the gland that eventually results in the thyroid's inability to produce sufficient thyroid hormone -- the condition known as hypothyroidism. Along the way, however, there can be periods where the thyroid sputters back to life, even causing temporary hyperthyroidism, then a return to hypothyroidism. This cycling back and forth between hypothyroidism and hyperthyroidism is characteristic of Hashimoto's disease. So, for example, periods of anxiety/insomnia/diarrhea/weight loss may be followed by periods of depression/fatigue/constipation/weight gain"
I think this may explain your recent weight loss. With a TSH of 45 there is no doubt you are hypothyroid and need the eltroxin. If you didn't already know; TSH stands for thyroid stimulating hormone. In basic terms its your body calling out for your thyroid to produce more thyroid hormone (t4, t3) as not enough is being produced. 45 is way over the normal range. Eltroxin is a synthetic form of t4 to replace this missing hormone and when you take it your TSH will respond by lowering.
Just as a side note: the test "Free t4" is a much better test to go by in future (as it tells you more about how much hormone you have rather that how much you're "calling out for").
As you havn't had symptoms before starting eltroxin I can't imagine you'll start having ones after. Hope this helps.
I have an underactive thyroid. I have always been underweight, which absolutely baffled my doctor when the first TSH test came back with a score of 11. Recently they are concerned that it may be an indicator of malabsorption, along with my consistently low iron results. If you are of a healthy weight I wouldn't be too worried but if you're underweight it would be worth switching doctors, yours doesn't sound the best. Although your TSH level is very high, be on the lookout for any symptoms which result from too much of eltroxin too fast- palpitations, constipation.
Possibly, I think constipation is a sign of too little eltroxin actually! My doctor was so scared I was started off on 25 every second day...now stable on 75 weekday/50 weekends
Yes, constipation as a sign of too little eltroxin makes sense.
Never heard of it the other way but maybe it's true. I read the signs to look out for, to check you weren't taking too much, were signs of hyperthyroidism.
Gettin diagnosed with anything longterm and needing to take a tablet for life is not easy - but as the good people of the forum here can help you with is that there are 2 ways to let a disease run. You can control your disease and become well informed and sensible and managing it as well as you would a temperamental car or other appliance - get used to it and know its individual quirks.
The alternative is to let it all wash over you - feel you have lost control and then you are not only unwell from that condition - but you are also down in the dumps about it all.
Please be VERY wary of the internet. DON'T google conditions. Always work from national endocrinology societies from either the usa or uk/ireland. Charities are good too - but people with axes to grind against the medical profession can masquerade as charities and other google results.
In a nutshell, hypothyroidism is a very common condition, very easily treated, very slowly treated as too much of a jump of thyroxine can make you very ill and vey slowly for test results to change. Everyone needs a slightly different dose of thyroxine as every thyroid is different before it claps out. TSH is simply very high, borderline up or down or very low. The actual number does not mean anything. TSH's of 30 or 3000 simply mean the effort your pituatory is making to make your thyroid produce thyroxine and does not correlate to actual deficiency.
The cause is not very relevant either as the treatment is the same although it is nice to know sometimes.
It sounds like you need a good working relationship with your GP. When you have a long term medical condition - you need regular followup and thus you should see a GP you get along well with - you are entitled to change your GP if you wish. Be careful of the internet and remember - never change or stop any medication without chatting to your doctor first.
You will do well and there are plenty of people here who can help you out.
I am new to posting, I was diagnosed over 3 years ago as borderline hypothyroid, It runs in my family, I have had 1 blood test since as I neglated myself, but have had numerous health problems which I put down to uderactive thyroid, I have turned into a hypochodriac as I constantly have pains all over my body! I will add that the recent blood test which was 2 years ago came back ok which I dispute, but that was 2 years ago!
I started taking kelp and selenium 3 days ago and already I feel it is doing something for me! I just feel that doctors shrug you off when it comes to this, like if you are not broke dont fix it kind of thing?
All feedback is very much appriciated!xx
TSH is like judging how much it's raining by looking out the window and counting the number of umbrellas people have up.
Much better actually find out how much 'rain' there is (Free T4), but they rarely test for it in Ireland.
Just wondering if anyone has ever been on http://en.wikipedia.org/wiki/Triiodothyronine for an underactive thyroid or depression?
I've been taking eltroxin for years am now on 250mc and I'm only 27. Everytime I get blood tests done it's shows it's low and they just keep upping the dose. I'm also taking anti-depressants but I really do think its the hypo-thyroidism that's making me feel low.
Are there other medications for this other than eltroxin? Or if anyone could reccommend a specialist in the Dublin area please PM me.
Thanks in advance