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JohnnieK · 23-01-2012, 22:40

O.K. My wife seen the surgeon last Friday week, he told her that the liver will be looked at again which we knew before Christmas. (fatty tissue we all have it, just want to take it out of the equation) We were told she will see the oncologist this Wednesday, now this might not happen because the oncologist will want to have all findings in front of him before he determines a treatment plan (which makes sense).

Absolutely no word from the hospital as of yet. My wife got a missed call from breast care on Friday when she rang back no answer so left a message.

No word today so she rang twice, no answer. Left a message the first time and then got them to page the bleep number the second.

I am livid to say the least. Is it normal for this to happen.

My worry is if this cursed cancer managed to move to the liver, with this delay it might become well established.

I'm so angry right now.

**CathyMoran** · 24-01-2012, 09:39

You do not know yet what the thing on the liver is. 18 months after my total oesophagectomy they found something there but it was nothing. The waiting is terrible I know.

JohnnieK · 24-01-2012, 22:55

She got a call today and we are off to the Oncologist tomorrow. They said she will probably be waiting a while for the MRI so nothing we can do about that right now.

Sorry if I came across a bit aggressive on the other post but was just a bit worried.

_AVALANCHE_ · 24-01-2012, 23:45

http://www.euromedic.ie/home.aspx

Carpenter · 27-01-2012, 15:36

Sorry was away any chance of an update on herself

JohnnieK · 28-01-2012, 22:04

She is doing great at the moment. We were in with the Oncologist on Wednesday last. She will be starting Chemo on the 6th, 4 cycles of AC Chemotherapy then 12 cycles of some other Chemo the name I cant think of at the moment. That will bring her up to 6 months. Then radiation therapy and then hormone treatment for 5 years after that.

I have to admit the Oncologist was mad and had us in stitches. We were really relaxed with him.

We are going private for the MRI because Baeumont cant even give us a date for it at the moment.

msthe80s · 28-01-2012, 22:14

Quote:

Originally Posted by JohnnieK

She is doing great at the moment. We were in with the Oncologist on Wednesday last. She will be starting Chemo on the 6th, 4 cycles of AC Chemotherapy then 12 cycles of some other Chemo the name I cant think of at the moment. That will bring her up to 6 months. Then radiation therapy and then hormone treatment for 5 years after that.

I have to admit the Oncologist was mad and had us in stitches. We were really relaxed with him.

We are going private for the MRI because Baeumont cant even give us a date for it at the moment.

Continued best wishes to you both,Johnnie- it's good to hear that she's keeping well. It's been a rollercoaster ride for the 2 of ye,
life is strange what it throws at a young mother-she'd lucky to have your support.
Remember to look after yourself too!!

_AVALANCHE_ · 28-01-2012, 22:42

Quote:

Originally Posted by JohnnieK

We are going private for the MRI because Baeumont cant even give us a date for it at the moment.

Where?

JohnnieK · 28-01-2012, 23:08

Quote:

Originally Posted by _AVALANCHE_

Where?

Going to the Hermitage in Lucan hopefully next week.

Carpenter · 29-01-2012, 11:32

John
As I said there will be up,s and down,s all you can do is try and relax take it 1 day @ a time and as time goes on it will get easier

**Dizzyblonde** · 29-01-2012, 12:41

That's great news Johnnie, continued best wishes to you both.

JohnnieK · 29-01-2012, 23:34

Oh I forgot to mention. We were accepted for the medical card to on Friday so that will lift some of the burden

. Forms were faxed from the hospital by the social worker on Friday morning and we were accepted after lunch. She said it was the fastest case she has ever had accepted. My Dad must be looking down on her, God rest him.

purrrfect1 · 30-01-2012, 10:15

Quote:

Originally Posted by JohnnieK

Oh I forgot to mention. We were accepted for the medical card to on Friday so that will lift some of the burden

. Forms were faxed from the hospital by the social worker on Friday morning and we were accepted after lunch. She said it was the fastest case she has ever had accepted. My Dad must be looking down on her, God rest him.

Things seem to be going Ok for ye and will continue to do so. There are so many things happening at the one time its difficult to keep track of them all, but you are very strong - both of you are- which is just as well, as its just what is needed to keep up..and yes, those up above certainly do look down on us and seem to ease things through for us. God rest them all.
Good luck to your wife for the treatment - keep us all posted.

JohnnieK · 31-01-2012, 22:39

Just a quick one.

My wife is starting Chemo on Monday. I'm feeling a bit afraid about the whole thing for the main reason I dont know what to expect, and how I will react to it all. I'm strong for her but deep down I'm feeling this. I suppose I just want to know if this is normal.
It was explained well to us but If you have not experienced anything like this it'd hard to imagine.

I hope I'm not being a pain posting all this.

_AVALANCHE_ · 01-02-2012, 01:52

^^^Don't expect it to be what you've seen on TV or what I'm assuming you have in the back of your mind as to what it's going to be like. It won't be that bad.

Hopefully she'll be lucky and will have little to no sickness from it, not everyone gets the Nausea and their's good drugs to lessen it now if she does get it.

She'll be quiet alot and looking off in to space alot, their will be out of the blue breakdowns and as it goes on she'll get abit more tired and lose some of her strength.

Expect to not get your questions answered and expect bluntness when you do get an answer.

The nurse has gone through "the sheets" on what to expect depending on the type of Chemo, the biggest early one of these in my experience shows up about 2ish weeks in, the Hair, if she has long hair then try and get her to cut it tighter before then so as not to wake up one morning to alot of hair loss on the pillow. It's tough to see it on the pillow but not to bad when you cut it by choice.

It may not be an option and may not be relevant but if it's doable then don't leave her on her own unless she asks to be left alone. People will go out of their way to help if you ask, so do. If someone around her is a "cryer" (and their's always one) politely tell them to F-OFF and do it somewhere else. Sick people--->F-OFF, her immune system will be weakened so don't risk her getting a bug out of politness.

You mentioned that it's 5 months of chemo, not everyone can/will finish the course, the more she can take the better but don't let her play the strong card on Chemo days when she's really not, near the end of the course talk to/tell the nurses if she doesn't feel up to it on a particular day or she could end up in Hospital for the 2 weeks after.

The 5 months will fly and I'm not just saying that. It's a month and a halfish since you started this Thread. The long evenings are coming aswell which will be a help.

You won't be able to be a Rock all the way through and that's alright.

Stock up on the Bovril, if she doesn't like it now she'll probably get a taste for it.

29-01-2012, 23:34	#42
JohnnieK Registered User Join Date: Jul 2009 Location: Balbriggan, Co. Dublin Posts: 1,835 Adverts \| Friends	Oh I forgot to mention. We were accepted for the medical card to on Friday so that will lift some of the burden. Forms were faxed from the hospital by the social worker on Friday morning and we were accepted after lunch. She said it was the fastest case she has ever had accepted. My Dad must be looking down on her, God rest him.

01-02-2012, 01:52	#45
_AVALANCHE_ Closed Account Join Date: Dec 2011 Posts: 1,605 Adverts \| Friends	^^^Don't expect it to be what you've seen on TV or what I'm assuming you have in the back of your mind as to what it's going to be like. It won't be that bad. Hopefully she'll be lucky and will have little to no sickness from it, not everyone gets the Nausea and their's good drugs to lessen it now if she does get it. She'll be quiet alot and looking off in to space alot, their will be out of the blue breakdowns and as it goes on she'll get abit more tired and lose some of her strength. Expect to not get your questions answered and expect bluntness when you do get an answer. The nurse has gone through "the sheets" on what to expect depending on the type of Chemo, the biggest early one of these in my experience shows up about 2ish weeks in, the Hair, if she has long hair then try and get her to cut it tighter before then so as not to wake up one morning to alot of hair loss on the pillow. It's tough to see it on the pillow but not to bad when you cut it by choice. It may not be an option and may not be relevant but if it's doable then don't leave her on her own unless she asks to be left alone. People will go out of their way to help if you ask, so do. If someone around her is a "cryer" (and their's always one) politely tell them to F-OFF and do it somewhere else. Sick people--->F-OFF, her immune system will be weakened so don't risk her getting a bug out of politness. You mentioned that it's 5 months of chemo, not everyone can/will finish the course, the more she can take the better but don't let her play the strong card on Chemo days when she's really not, near the end of the course talk to/tell the nurses if she doesn't feel up to it on a particular day or she could end up in Hospital for the 2 weeks after. The 5 months will fly and I'm not just saying that. It's a month and a halfish since you started this Thread. The long evenings are coming aswell which will be a help. You won't be able to be a Rock all the way through and that's alright. Stock up on the Bovril, if she doesn't like it now she'll probably get a taste for it. Last edited by _AVALANCHE_; 01-02-2012 at 05:15.

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23-01-2012, 22:40	#31
JohnnieK Registered User Join Date: Jul 2009 Location: Balbriggan, Co. Dublin Posts: 1,835 Adverts \| Friends	O.K. My wife seen the surgeon last Friday week, he told her that the liver will be looked at again which we knew before Christmas. (fatty tissue we all have it, just want to take it out of the equation) We were told she will see the oncologist this Wednesday, now this might not happen because the oncologist will want to have all findings in front of him before he determines a treatment plan (which makes sense). Absolutely no word from the hospital as of yet. My wife got a missed call from breast care on Friday when she rang back no answer so left a message. No word today so she rang twice, no answer. Left a message the first time and then got them to page the bleep number the second. I am livid to say the least. Is it normal for this to happen. My worry is if this cursed cancer managed to move to the liver, with this delay it might become well established. I'm so angry right now.

24-01-2012, 09:39	#32
CathyMoran Moderator Join Date: Jun 2004 Location: In hospital, work or at home Posts: 7,244 Adverts \| Friends Mod: Adoption	You do not know yet what the thing on the liver is. 18 months after my total oesophagectomy they found something there but it was nothing. The waiting is terrible I know.

24-01-2012, 22:55	#33
JohnnieK Registered User Join Date: Jul 2009 Location: Balbriggan, Co. Dublin Posts: 1,835 Adverts \| Friends	She got a call today and we are off to the Oncologist tomorrow. They said she will probably be waiting a while for the MRI so nothing we can do about that right now. Sorry if I came across a bit aggressive on the other post but was just a bit worried.

24-01-2012, 23:45	#34
_AVALANCHE_ Closed Account Join Date: Dec 2011 Posts: 1,605 Adverts \| Friends	http://www.euromedic.ie/home.aspx

27-01-2012, 15:36	#35
Carpenter Registered User Join Date: Nov 2004 Location: Dublin/Kusadasi Posts: 1,868 Adverts \| Friends	Sorry was away any chance of an update on herself

28-01-2012, 22:04	#36
JohnnieK Registered User Join Date: Jul 2009 Location: Balbriggan, Co. Dublin Posts: 1,835 Adverts \| Friends	She is doing great at the moment. We were in with the Oncologist on Wednesday last. She will be starting Chemo on the 6th, 4 cycles of AC Chemotherapy then 12 cycles of some other Chemo the name I cant think of at the moment. That will bring her up to 6 months. Then radiation therapy and then hormone treatment for 5 years after that. I have to admit the Oncologist was mad and had us in stitches. We were really relaxed with him. We are going private for the MRI because Baeumont cant even give us a date for it at the moment.

29-01-2012, 11:32	#40
Carpenter Registered User Join Date: Nov 2004 Location: Dublin/Kusadasi Posts: 1,868 Adverts \| Friends	John As I said there will be up,s and down,s all you can do is try and relax take it 1 day @ a time and as time goes on it will get easier

29-01-2012, 12:41	#41
Dizzyblonde Moderator Join Date: Aug 2007 Location: North County Dublin Posts: 4,681 Adverts \| Friends Mod: Dublin County North, Food & Drink	That's great news Johnnie, continued best wishes to you both.

31-01-2012, 22:39	#44
JohnnieK Registered User Join Date: Jul 2009 Location: Balbriggan, Co. Dublin Posts: 1,835 Adverts \| Friends	Just a quick one. My wife is starting Chemo on Monday. I'm feeling a bit afraid about the whole thing for the main reason I dont know what to expect, and how I will react to it all. I'm strong for her but deep down I'm feeling this. I suppose I just want to know if this is normal. It was explained well to us but If you have not experienced anything like this it'd hard to imagine. I hope I'm not being a pain posting all this.