[1.618]

Originally Posted by Tomk1

I bet you are O-type,

A neg as it turns out.

Massive post there, fair dues.

My update-

I purposely avoided updating before now because I didn't want to do the 'I'm doing good while other's are not'.
Basically, I've gotten to grips with it big time. Since I first started posting in this thread I've seen a huge improvement and have only had a minor relapse about 6 weeks ago. No radical change in diet and still lots of water/fluids and a 'reduced stress' frame of mind.

I firmly believe that this is a very 'individual specific' problem and there is no magic bullet that fixes it, but needs to be tailored/tweaked (within the diet and stress management regime) to each person individually.

I hope everyone will get there eventually cos there's no doubt- its a bastid.

[KKkitty]

Originally Posted by 1.618

A neg as it turns out.

Massive post there, fair dues.

My update-

I purposely avoided updating before now because I didn't want to do the 'I'm doing good while other's are not'.
Basically, I've gotten to grips with it big time. Since I first started posting in this thread I've seen a huge improvement and have only had a minor relapse about 6 weeks ago. No radical change in diet and still lots of water/fluids and a 'reduced stress' frame of mind.

I firmly believe that this is a very 'individual specific' problem and there is no magic bullet that fixes it, but needs to be tailored/tweaked (within the diet and stress management regime) to each person individually.

I hope everyone will get there eventually cos there's no doubt- its a bastid.

I'm thrilled for you At the moment I've a fair bit on my mind so I'm trying to sort that out. I'm cutting down on chocolate and overly processed foods and have my sachets of fybogel mevebrine to help in case of a bad day. It's a horrible affliction and even my son who's 6 has pointed out on numerous occasions that I hardly go anywhere. It's a big deal when he sees that change in me. I didn't think he'd notice at that age but he did. I feel like I'm letting my kids down over it sometimes.

[Dan133269]

Originally Posted by qrrgprgua

try and limit your meals to 3 a day.

That is questionable advice I would say, why is it better to eat 3 meals a day? As far as I understand from reading on nutrition, eating 6 small meals rather than 3 big meals is better because it will:
- give your body a steady supply of energy (instead of highs and lows from eating so infrequently)
- keep blood sugar and insulin levels constant
- stop your stomach from being stretched by eating too much in one sitting
- help reduce hunger as you're not going for long periods without eating.

Of course this depends on the individual, but if you have a healthy appetite, this applies.

Originally Posted by KKkitty

I'm thrilled for you At the moment I've a fair bit on my mind so I'm trying to sort that out. I'm cutting down on chocolate and overly processed foods and have my sachets of fybogel mevebrine to help in case of a bad day. It's a horrible affliction and even my son who's 6 has pointed out on numerous occasions that I hardly go anywhere. It's a big deal when he sees that change in me. I didn't think he'd notice at that age but he did. I feel like I'm letting my kids down over it sometimes.

You shouldn't feel like that, you have an illness. Do you have a garden? You could play with the kids there, and wouldn't have to leave your home environment.

By the way, I think a little bit of dark chocolate will be fine for you, the good quality stuff. It's very healthy for most people, and it's considered fine for the low fodmap diet as well.

[KKkitty]

Thanks Dan I have a garden but I'd love to feel comfortable bringing both my boys to the park again. The nearest toilet to it is in a hotel so it's way to daunting if I had to use that toilet. Have tried dark chocolate but didn't like it. Wish I could find what's good for me.

[ViveLaVie]

[/Quote] Good to hear you're on the mend!
Can I ask you what the dietician did for you? I've never seemed to have any trigger foods with my Crohn's. I went 5 years in complete remission eating absolutely everything and anything, including a lot of indulgence

But over the last while I've been trying to see if any foods make me worse. I stuck to the low fodmap diet rigidly for about a month and had no improvement at all. So I'm wondering, is there anything a dietician could realistically do for me? I'm not going to hand over 50 euro to be told to eat fruit and vegetables.[/Quote]

I have Crohn's too and I find my dietician invaluable. When I'm in remission there's no real need for her but she has been so useful when sick. That said she's a particularly good dietician - I have had absolutely useless ones before.

She has started me on very specific prescription dietary supplements which are nutritionally complete and can be used as food replacements when I'm not up to eating. Some of these can also be used as sole sources of nutrition and are designed specifically for IBD so have been proven to be as effective as steroids in reducing intestinal inflammation and inducing remission.

I would say go for a consultation anyway and see is it worth your while.

[username123]

Its ages since I posted on this thread and my ibs symptoms have been more or less under control for years with the exception of certain foods, and minor stomach acid/cramping that is tolerable.

So the reason I am posting is news. I had an operation on my sinuses a few weeks ago, to remove nasal polyps and clean out the sinuses and since then, my stomach acid is mostly gone!! It turns out that post nasal drip can affect the stomach by draining away down the throat all day. I never even knew it!

[marann]

Originally Posted by username123

Its ages since I posted on this thread and my ibs symptoms have been more or less under control for years with the exception of certain foods, and minor stomach acid/cramping that is tolerable.

So the reason I am posting is news. I had an operation on my sinuses a few weeks ago, to remove nasal polyps and clean out the sinuses and since then, my stomach acid is mostly gone!! It turns out that post nasal drip can affect the stomach by draining away down the throat all day. I never even knew it!

I think you definitely have something there. I found my ibs aggravated by sinus infections in the past, I also associated sinus trouble with pre menstrual stress and stress in general, all a vicious circle, causing fatigue/ exhaustion.Marann

[KKkitty]

An update from me. Received a letter from my doctor this morning regarding a blood test for coeliac disease that I had done last year saying there may have been a fault with the analyser of my blood sample and that I could have been given a false negative of that test. I have to give another blood sample soon to see what the story is and also see if they'd test for candida albicans. Any ibs medication I've taken has been little or no help so I'm determined to get to the bottom of this once and for all. Username123 that's excellent news. Long may your good health last

[username123]

Thanks marann and kkkitty, unfortunately they cant 'cure' my sinuses, just control them on and off with steroid sprays, but at least I know whats happening.

kkkitty - I hope your test happens soon. If you suspect candida albicans you can eradicate that from your system by taking a fluconazole tablet, you can get it over the counter in the uk or ni, a 'canestan oral' is the same. I buy a generic version from amazon for 3 pound or so. You would be able to rule out candida with that - thats how I found out I had it, and I get it on and off now.

[KKkitty]

Username123 I have been looking online about candida albicans and I have quiet a lot of the symptoms. I'll talk with my GP on Monday when I'll be getting my blood taken. Since ibs medication hasn't provided me with any sizeable relief I'm going to make sure my doctor listens to me. It's ok for them to fob patients off but they're not the ones suffering.

[username123]

Yeah I got fobbed off for a couple of years (and thousands of pounds worth of doctors visits) on it. Western medicine doesnt recognise candida as a problem, but it can be. Good luck with your doctor.

[KKkitty]

Thanks username123. I'll let you know how I get on. It's terrible the way doctors fob patients off.

[username123]

Originally Posted by KKkitty

Thanks username123. I'll let you know how I get on. It's terrible the way doctors fob patients off.

I know. I dont know if its a lack of funding or what but it seems to me that I can look after my own health better in a lot of cases by using google rather than taking my doctors advice!!

[KKkitty]

Originally Posted by username123

I know. I dont know if its a lack of funding or what but it seems to me that I can look after my own health better in a lot of cases by using google rather than taking my doctors advice!!

It's nearly better if you go to a chemist and ask for advice. Won't cost you anything only the time you're in the chemists and a pharmacist would know more than a doctor. Doctors just consult their medical books or computers and rattle off a load of jargon that goes over your head most of the time.

[sham69]

update from me:
Had a consultation with a gastroenterologist on Monday.
Asked me all about my symptoms.
Told him that I havent had a bad episode since the last time I drank Guinness, have been drinking lager in small quantities with no issue.
Only real problem now is uncomfortable like feeling on bottom right of my stomach and sometimes there is some blood in my stool.
He said I was over weight for my height and that he was concerned about my blood test and in particular my liver (my doctor said the bloods were all clear?)
When I said this to him he kind of back tracked and said " well maybe all is ok, as the ultrasound would have shown something up but we'll keep an eye on it "


So I have been given an appointment for a full Colonoscopy, I thought I would feel relieved after the gastro visit but if anything he freaked me out even more.
He was quite direct and abrubt but I suppose thats his job.

I also suffer from really bad nasal drip so thats another thing I never thought of mentioning (thanks username123)

Anyway I have a 2 month wait and am not really sleeping.
I have 3 young kids and although its only a minor procedure I am having done I am shi**ing a brick and thinking the worst.

Best of luck to all the rest of you suffering with similar symptoms, I hope you all feel better soon.
Sham.