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03-07-2012, 11:38   #916
Meauldsegosha
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Hi i have CF and on my yearly NCT i failed the glucose tolerance test so they gave me a meter to check my levels and its been between 6 and 12 all week averaging around 8-9 i suppose, so going to the diabetes clinic today do you think this is grounds for insulin or is fairly ok , (bear in mind i drink alot of coca cola) and find it hard to let go lol
Swap to diet coke and those numbers could drop. I remember reading there is between 9 and 13 spoons of sugar in a can of coke.
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03-07-2012, 12:56   #917
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So maybe if i say that to the doc that i'll switch maybe he won't stick me on insulin because i'm panicking like **** i do not like the idea of injecting every day
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03-07-2012, 13:50   #918
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So maybe if i say that to the doc that i'll switch maybe he won't stick me on insulin because i'm panicking like **** i do not like the idea of injecting every day
ok, here's the thing. If you aren't diabetic, you can drink as much coke as you want and your bloods will be in and around normal, because you just produce more insulin to compensate. So in my personal opinion, stopping drinking coke won't prevent anything, but it is a good idea in terms of weight etc.

SEcond, I'm assuming you're not being treated for diabetes at the moment, right? In that case, if your bloods are averaging around 8-9, that's elevated, but not high. So I would suggest that probably if you are diabetic, and I don't know if you are, then you're type 2, which means you're still producing insulin, it's just not as effective as it used to be. This means you probably won't need any more insulin, you just need to reduce your resistance to what you make yourself, and this is done usually with oral medication, exercise and a change of diet.
So, yeah - cut out the coke, but that alone may not be enough.

thirdly - if you do have to take insulin, don't worry about it. You hate the idea of it because you've never done it, and you assume it'll be sore, but it isn't as bad as you think it is. It's more of a chore than sore - it's like shaving or having to cut your nails - if you didn't have to do it, you wouldn't, but it's not a big deal.
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03-07-2012, 13:59   #919
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So maybe if i say that to the doc that i'll switch maybe he won't stick me on insulin because i'm panicking like **** i do not like the idea of injecting every day
It's not that simple there could be all sort of reason why your levels are high. You need to go to your doctor, get tested and discuss things with him. If you are type 2 diet and medication could be regime you are put on. And if you are type 1 then the injections aren't that bad you soon get use to them.
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03-07-2012, 14:28   #920
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Originally Posted by brianregan09 View Post
Hi i have CF and on my yearly NCT i failed the glucose tolerance test so they gave me a meter to check my levels and its been between 6 and 12 all week averaging around 8-9 i suppose, so going to the diabetes clinic today do you think this is grounds for insulin or is fairly ok , (bear in mind i drink alot of coca cola) and find it hard to let go lol
Without knowing when you are taking your BG tests it would be impossible to tell if they are inappropriate readings or not. Also when you say you "failed" your GTT, what precisely do you mean? Were they slightly elevated, were they grossly elevated, where you doing less that morning, was it a huge change to your average daily routine?

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It's not that simple there could be all sort of reason why your levels are high. You need to go to your doctor, get tested and discuss things with him.
+1, I presume you are not or at least have not been diagnosed diabetic yet, no one here will be able to tell you much without alot more specifics, and aside from that, this is the internet, get a doctor/nurses opinion, CFRD is different in many respects to type 1 and type 2, and the treatment is a mixture of the treatment of both and in some ways contradictory, its almost like trying to treat both at the same time. CFRD is often hard to diagnose so if you've caught it great, my knowledge is limited to one talk at a conference years ago so my knowledge maybe out of date.

If CFRD you will not be trying to boost insulin secretion as this is most likely being inhibited through a range of factors including mucus, blocking of beta cell ability to sense shifts in glucose levels, anti inflammatorys etc etc (again, no expert, these are words that sound familiar), Treatment will be insulin and excercise and sugars to basically be controlled through boosting of insulin receptor sensitivity (through excercise) and shifting insulin injection levels (ie taking over from your beta cell). There was something about diet but I can't remember what.
But my main advice, talk to your care team as they will be the best to deal with this hopefully, I don't think I've seen a CFRD patient on this thread before, very interested to hear back from you, particularly on how right or wrong I am from the doctors perspective.

Time to go google scholar some papers on this to make me sound smart
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03-07-2012, 18:36   #921
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Ok just back now and fairly relieved but still alittle apprehensive at the same time, now i've been put on a single shot at 8 units of Levemir to start off, now as i sed i was brickin it over the needle thing but got a 6mm which is tiny and barely felt it, and was told switch to diet coke, the reason my levels are high is because of t,he steroids im on 10mg of Prednisilone, so i think last poster was definitly on to something there, My levels were very high in the morning around 11.00 to 10.00 so thats what the doc wants to sort and has set a regular target of 7 which is fair enough

now my turn what diffrence had insulin made to ur lives ? Also should i be afraid of Hypos do they happen often
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05-07-2012, 14:15   #922
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now my turn what diffrence had insulin made to ur lives ? Also should i be afraid of Hypos do they happen often
Well without it I would be dead, so a positive influence for the most part (unless you know me personally ).

As for the fear of hypos, they are not pleasant but again I am unsure of the response for CFRD. I presume that the reasons for the inhibited insulin response would bring about an inhibition of the glucagon response, therefore making the chances of hypoglycaemia reasonable. Older papers seem to suggest it was common but they are 20+ years old and may not be relevant.

Did your team talk you through the hypos? Do you know the warning signs and what to do? most importantly, brief those closest to you on what to do and what not to do, this is the most important thing for severe hypos in my opinion.
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05-07-2012, 18:25   #923
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now my turn what diffrence had insulin made to ur lives ? Also should i be afraid of Hypos do they happen often

I've only had T1 for about 3 months or so, the insulin isnt such a pain in the ass as you might think and in fairness its the the fear of getting the first hypo is the worst, I was almost relieved I got my first one (showed my BG was finally coming down) I've thank god never collapsed from one yet, you'll always have a lot of warning before that happens!
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05-07-2012, 21:27   #924
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Hypos aren't that bad. You'll find your own symptoms and you'll be able to know yourself soon enough when they are coming. I remember my very very first hypo, I just thought I was really hungry. It happened while I was still in hospital after my initial diagnosis and as the nurse was testing my sugars she asked me did I feel strange.

No need to be afraid of them, sometimes it can be an excuse to have a little treat that you usually would have to stay away from. Not all the time and it's not something that I would encourage but we're all human and I love chocolate! :-)
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05-07-2012, 21:36   #925
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Hypos can be very dangeous - not everyone is hypo aware - I have problems with them - the closer to normal levels the more hypos I get I find. I have had type 1 since I was 10 and am 38 now but mone is complicated by having dumping syndrome due to surgery I had to have for another condition.
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05-07-2012, 21:47   #926
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@ Cathy

Is that an xmas hat on your Avatar?

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05-07-2012, 21:52   #927
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@ Cathy

Is that an xmas hat on your Avatar?

It is a good luck charm at this stage - have had it since I was ill (either the big c that I was diagnosed with in 2006 or when I was ill and pregnant with my children) - we called our son tigger before he was born.

I do find that having diabetes and other conditions makes life interesting but I am still alive so that is good.

I hope that the new calorie thing on food includes carbs - would be great!
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05-07-2012, 22:12   #928
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I hope that the new calorie thing on food includes carbs - would be great!
You mean what James Reilly was on about on the news?

Looks like it's just gonna be Calories.

http://www.fsai.ie/news_centre/press.../04072012.html

http://www.thejournal.ie/calorie-cou...09599-Jul2012/
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07-07-2012, 21:01   #929
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I've only had T1 for about 3 months or so, the insulin isnt such a pain in the ass as you might think and in fairness its the the fear of getting the first hypo is the worst, I was almost relieved I got my first one (showed my BG was finally coming down) I've thank god never collapsed from one yet, you'll always have a lot of warning before that happens!
Not always. Most find that their symptoms of hypos reduce and/or change over time. I rarely notice a hypo now but the OH and, strangely, the dog both notice well before i do
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07-07-2012, 21:08   #930
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I did not notice a 1.9 earlier, I find that I only notice below 1.2 which is not good. I try to keep my hba1c below 5.5 in old money and am a type 1 which is is hard.
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