Originally Posted by lizanne000
yea my friend has suggested what i do is keep a food diary and how i feel after it!!! i will do that over the weekend!!!
I have a party to go to to tomorrow night and i really wish i could enjoy it but i know i will be sitting there going oh no thanks no i wont have that, ill just have water, hehe, so boring!!!
Bring a bottle of Ribena or something to flavour the water. Also- try not to stay out too late (I know easier said than done), but rest, and lots of it, helps enormously.
When my GP gets results of tests, or a letter from the consultant- my GPs secretary will always ring me immediately and let me know what the results/contents of letter are, and what the meaning of it is. I think this is very decent and reasonable of my GP.
When I'm in remission- I actually sleep at night, and do not wander around work during the day with a low grade temperature the whole time. I loose a bit of weight- as you do have water retention when you're on cortisone. But in general, I have a lot more energy and the thought of doing things- little things, doesn't fill me with a sense of dread.
Re: what medication am I on- I should point out first of all, that Crohn's isn't my only complaint at the moment, so this will not be applicable to you...... but here goes:
Imuran 300Mg (once in the morning)
Neoclarityn 30Mg x twice daily
Immodium 2 tablets as required
Deltacortil (currently on 30Mg on a reducing scale)
Ideos (supposed to be taking 4 a day- I'm not that good at taking it though)
Panadol (to lower temperature, and for pain relief)
Brufen (Ibuprofen) 600Mg x 3 times daily
Neocytamen (by injection once every 2 weeks)
Buscopan (2 before meals)
Stematil (1 every hour before meals)
When I finish my dose of deltacortil- I will go back onto a daily 9Mg of Budenofalk, which is specially for Crohn's sufferers.
From next week onwards I'll also be on something for dissolving blood clots too
You should see the little bag of medication that I bring around with me!