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Diabetes Support groups: Details and Announcements thread

124

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  • Registered Users Posts: 499 ✭✭graflynn


    The final Parents Get-together for the year is due to be held in November, however, with many demands on everybody's time Carmel and I would like to suggest that instead of our usual get-together that we attend the upcoming Diabetes Ireland Public Education Meeting at the Castletroy Park Hotel, Wednesday 5th November 2014 at 7pm and we can catch-up there.

    This is a free public event open to all.

    The Agenda is as follows:

    "Current & Future Management of Type 1 Diabetes" by Professor Clodagh O'Gorman, Consultant Paediatrician, University Hospital, Limerick

    "Physical Activity and Nutrition with Type 1 Diabetes" Ms Pauline Dunne, Dietitian, Diabetes Ireland

    Tea/Coffee

    "An update on Management Challenges in Diabetes: Hazards of Hypoglycaemia" Dr James O'Hare, Consultant Endocrinologist, University Hospital, Limerick.

    Just for information, I did phone Diabetes Ireland and enquire if this event would be suitable for teenagers with T1 and they said they had a few teenagers attend the meeting in Donegal, some were interested and some were not so it was really up to the parents knowing their own individual child.

    Rgds,
    Olivia & Carmel :-)
    More information from this link; http://www.diabetes.ie/2014/09/14463/


  • Registered Users Posts: 499 ✭✭graflynn


    Clare Type 2 Diabetes Support Group.

    The Clare Type 2 Diabetes Support Group will meet on Tuesday, the 18th November in the Temple Gate Hotel, Ennis, Co. Clare at 8pm. This meeting is free to attend and all are welcome. The Clare Diabetes Support Group can be contacted on the following email at clarebranchdfi@gmail.com and phone number 087 641 5747


  • Registered Users Posts: 499 ✭✭graflynn


    Hot off the presses; A new parents of children with diabetes group just started today for people living in the Galway area.
    https://www.facebook.com/groups/1496001700679252/

    They are organising their first get-together in the Maldron Hotel Oranmore Saturday 29th November at 12 pm.

    They are still finding their feet and it would probably be best to join the Facebook Group in case the date or time changes.


  • Registered Users Posts: 499 ✭✭graflynn


    in Laois, Dublin, Cork
    See the events list for more details;
    http://www.diabetes.ie/events/list/

    Cork Children's Christmas Party:
    is a free event and open to all the family, Registration is essential before 27th November, contact us @ 0214274229 to get more details. If you do not register we may not have parcel for everyone and would hate to disappoint any child.

    Sunday 7th Dec
    SMA Parish Hall, Wilton.


  • Registered Users Posts: 499 ✭✭graflynn


    The Clare Type 2 Diabetes Support Group have invited Dr. Ray O'Connor, Limerick based GP to share some tips on how to prevent diabetic kidney disease in people with type 2 diabetes. This event takes place on Tuesday, the 20th January in Ennis, Co. Clare at 8pm.

    This meeting is free to attend but space is limited. Anyone wishing to attend this event will have to call this number 087 641 5747 and leave their name, how many places they would like to reserve and a contact number where you can be reached. Alternatively, people can email Grainne at the following email at clarebranchdfi@gmail.com.

    The Clare Type 2 Diabetes group meets every second month and information about future meetings can be obtained from the above contact information.


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  • Registered Users Posts: 499 ✭✭graflynn


    Diabetes Ireland and HealthSmart have developed a bespoke weekend break for people living with Type 2 Diabetes. From 27th Feb to 1st March

    The Retreat focuses on the key pillars of living a healthy life; exercise, nutrition, and psychology, which will give participants the tools they need for weight loss if necessary, and a long-term balanced healthy lifestyle. Located in luxurious settings in Trim, Co Meath, the retreat has fantastic facilities and a team of experts to help kick start your health. Besides being great fun; the retreat also offers an opportunity for people living with Diabetes to meet others living in similar circumstances.

    http://healthsmart.ie/diabetes-ireland-retreat/


  • Registered Users Posts: 499 ✭✭graflynn


    Rebecca Flanagan, owner of Ballyvara Guest house in Doolin, co. clare, is organising a weekend retreat for mothers and their daughters with type 1 diabetes.

    The retreat is open to mother/daughter teams, where daughters are aged between 13 and 17 years and will take place on the 6th - 8th February 2015. The weekend costs €70 per mum/daughter team.

    Rebecca's 14 year old daughter has type 1 diabetes and Rebecca is taking the initiative to address the lack of psychological support for young people with type 1 diabetes. It is also a non-profit making endeavour for the Flanagan Family.

    Type 1 diabetes is an autoimmune disease, that requires constant monitoring, multiple daily injections of insulin, calculating how much carbohydrate is in your food and how much insulin to take to keep blood glucose sugars within a normal range.

    Living with type 1 diabetes places a huge strain on positive mental attitude and our Type 1 Diabetes conference will focus on the psychosocial impact of living

    The weekend will include a workshop with Helena Farrell from Diabetes Insight, a diabetes nurse educator and counsellor, who will help the girls discuss some of the challenges that living with type 1 diabetes brings and advice on how to deal with those challenges.

    There will also be ample opportunities for the girls to swop diabetes "war" stories, maybe some hiking on the cliffs of moher and of course a pyjama party.

    Anyone interested in attending this weekend should contact Rebecca Flanagan, Ballyvara House, Doolin, Co. Clare. Telephone: 085 8888 581. Ballyvara house can be viewed on www.vrbo.com/386415.


  • Registered Users Posts: 499 ✭✭graflynn


    The Galway parents of children & Young people with type 1 diabetes are meeting up on Thursday the 22nd of January in the Maldron Hotel, Oranmore at 9pm. This group would be a good way to meet other parents in the area.


  • Registered Users Posts: 499 ✭✭graflynn


    The next meeting of the Clare Type 1 Diabetes Support group takes place on Tuesday 10th February at 8pm in the Temple Gate Hotel, Ennis.

    The topic of this meeting is Blood Glucose Meters; the different types, the accuracy and the different features that they all have. If you are planning to attend this meeting please bring your blood glucose meter so that we have a wide variety of meters to talk about.

    This meeting is an informal group of adults with type 1 diabetes and parents of children with diabetes.

    Clare Diabetes Support can be contacted on telephone number 087 641 5747 or email: clarebranchdfi@gmail.com


  • Registered Users Posts: 499 ✭✭graflynn


    The Clare Type 2 Diabetes Support Group will have their next get-together on Tuesday, the 24th March in Ennis, Co. Clare at 8pm.

    This meeting is free to attend and open to anyone who wants to learn more about Type 2 Diabetes. If you would like more information about our support group call Grainne at 087 641 5747 or email clarebranchdfi@gmail.com.

    The Clare Type 2 Diabetes group meets every second month and information about future meetings can be obtained from the above contact information.


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  • Registered Users Posts: 499 ✭✭graflynn


    Clare Type 1 Diabetes Support.

    The next meeting of the Clare Type 1 Diabetes Support group takes place on Tuesday 14th April at 8pm in the OLD GROUND Hotel, Ennis.

    We have invited international rugby union referee and person with type 1 diabetes, George Clancy as our guest speaker. George will share his type 1 diabetes story with us and how he tries to balance an international rugby career, travel, work and family life.

    This meeting is an informal group of adults with type 1 diabetes and parents of children with diabetes. The Clare Type 1 Diabetes Support Group can be contacted on telephone number 087 641 5747 or email: clarebranchdfi@gmail.com


  • Registered Users Posts: 499 ✭✭graflynn


    We have found our venue for Thrive-abetes; the Thrive with Type 1 Diabetes conference for Adults living with T1 and for Parents of Children with T1.

    http://thrive-abetes.blogspot.ie/2015/04/our-venue-is-booked.html

    This conference is happening on Saturday, 3rd October 2015. More to follow.:D

    Grainne.


  • Registered Users Posts: 499 ✭✭graflynn


    Type 1 Diabetes Interactive Patient Evening
    May 12 @ 6:30 pm - 9:00 pm

    http://www.diabetes.ie/event/17521/


  • Registered Users Posts: 499 ✭✭graflynn


    Cork: TYPE 1 Diabetes Research Developments
    May 14 @ 7:30 pm - 9:00 pm
    Diabetes Ireland Research Alliance (DIRA) and Juvenile Diabetes Research Foundation (JDRF), are holding an information evening on TYPE 1 Diabetes Research Developments. The meeting will be held on Thursday, May 14th, 2015 at 7.30pm in the Imperial Hotel, Cork.

    Click here for more info, agenda and speakers.


  • Registered Users Posts: 499 ✭✭graflynn


    The Clare Branch of Diabetes Ireland are holding an information evening on ‘understanding food labels’ in the Temple Gate Hotel, Ennis on Tuesday 19th May at 8pm.

    We hope that by attending this session people will learn to more easily interpret nutritional information and food labels, and ultimately better the dietary management of their diabetes” says Pauline Dunne, dietitian with Diabetes Ireland.

    Self-care is an essential part of good diabetes care! To do this well continuously over a long period of time is not easy and reinforcing of good diabetes management tips and advice is needed regularly.

    At first glance food labels are not always easy to understand. There is often confusion between the terms ‘carbohydrates’ and ‘sugars’ with most people only considering sugars to be important. However, both sugars and the amount of total carbohydrate need to be considered by people with diabetes when making food choices.

    This meeting is free to attend. The Clare Diabetes Support Groups can be contacted on telephone number 087 641 5747 or clarebranchdfi@gmail.com.


  • Registered Users Posts: 499 ✭✭graflynn


    Clare Type 1 Diabetes Support.

    The next meeting of the Clare Type 1 Diabetes Support group takes place on Tuesday 16th June at 8pm in The Temple Gate Hotel, Ennis.

    This meeting is an informal group of adults with type 1 diabetes and parents of children with diabetes. We share information about living with Type 1 diabetes and our life experiences to learn from each other over a cuppa.

    The Clare Type 1 Diabetes Support Group can be contacted on telephone number 087 641 5747 or email: clarebranchdfi@gmail.com


  • Registered Users Posts: 499 ✭✭graflynn


    The next meeting of the Clare Type 1 Diabetes Support group takes place on Tuesday 16th June at 8pm in The Temple Gate Hotel, Ennis.

    We have invited international rugby union referee, person with type 1 diabetes, and Limerick native, George Clancy as our guest speaker. George will share his type 1 diabetes story with us and how he tries to balance an international rugby career, travel, work and family life.

    This meeting is an informal group of adults with type 1 diabetes and parents of children with diabetes. We share information about living with Type 1 diabetes and our life experiences to learn from each other. The Clare Type 1 Diabetes Support Group can be contacted on telephone number 087 641 5747 or email: clarebranchdfi@gmail.com


  • Registered Users Posts: 499 ✭✭graflynn


    It is with great pleasure that we announce confirmation of another great speaker at the Thrive-abetes; Thrive with Type 1 Diabetes conference.

    Dr. Clare McVicker is the Director of Research Advocacy, at the type 1 diabetes research charity, JDRF in the United Kingdom. JDRF is the world’s leading charitable funder of type 1 diabetes research and its vision is a world without type 1 diabetes.


    What is Thrive-abetes?

    Thrive-abetes is a one day conference for adults living with type 1 diabetes and parents of children with diabetes, taking place on Saturday, the 3rd October 2015 in The Glenroyal Hotel, Maynooth, Co. Kildare.

    "Thrive-abetes" is a first-of-it's-kind event in Ireland - a conference organised by people with type 1 diabetes for people with type 1 diabetes!

    This Type 1 Diabetes conference is going to focus on the psychological impact of living with a chronic, lifelong illness. We aim to provide “Inspiration, Motivation and Information” to people living with type 1 diabetes, both parents of children with diabetes and adults at our conference.

    The speakers are internationally renowned in the diabetes community and we have 12 exhibitors from the diabetes pharmaceutical industry.

    Find out more here.


  • Registered Users Posts: 499 ✭✭graflynn


    Finally!! Registration for Thrive-abetes is open. Register here.

    Thrive-abetes is a one day conference for parents of children with type 1 diabetes and adults living with type 1 diabetes.

    It takes place on Saturday, October 3rd 2015 in Maynooth, Co. Kildare.

    "Thrive-abetes" is a first-of-it's-kind event in Ireland - a conference organised by people with type 1 diabetes for people with type 1 diabetes!

    The speakers will include people who are internationally renowned in the diabetes community, including Joe Solowiejczyk who is a certified Diabetes Nurse, a Family Therapist, and has lived with Type 1 diabetes for over 50 years. He is also the author of A Type 1 Diabetes Guide to the Universe.

    Kate Fakakerly is mother to Isobel who was diagnosed when she was two years old. Isobel is now 24 and hopes to present with Kate at “Thrive-abetes”. Kate is also Chair of the Families with Diabetes National Network UK, a network of all regional parent representatives in England who represent the views of families.

    Helena Farrell, is founder of Diabetes Insight, and specialises in diabetes education, support and nutrition. Helena will give delegates some pointers on how to avoid diabetes burnout; a state of disillusionment and depression, in which all of the effort required of people with diabetes can sometimes lead to.

    Dr. Kevin Moore, consultant endocrinologist in Tallaght Hospital and Naas General Hospital. Dr. Moore has worked tirelessly throughout his career to improve the lives of patients with diabetes.

    And finally, Dr. Clare McVicker, head of advocacy at JDRF UK will update all of the delegates on the clinical trials of the closed loop artificial pancreas, beta cell encapsulation and other new developments in the treatment of type 1 diabetes.

    We hope you can join us,
    Grainne, Christine & Rebecca.


  • Registered Users Posts: 16 Dozo


    T1 Advocacy Ireland has been established to represent the needs of people in Ireland with ‪Type1 Diabetes‬:

    We intend to do this by:
    • Creating awareness about Type 1 diabetes
    • Being a single voice for all Type 1 diabetes adults and children
    • Working to achieve better healthcare and support for Type 1 diabetes adults and children
    • Providing hope

    Please visit us on facebook: T1 Advocacy Ireland


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  • Registered Users Posts: 499 ✭✭graflynn


    The next meeting of the Clare Type 1 Diabetes Support group takes place on Tuesday 20th October at 8pm in The Temple Gate Hotel, Ennis.

    This meeting is an informal group of adults with type 1 diabetes and parents of children with diabetes. We share information about living with Type 1 diabetes and our life experiences to learn from each other.

    The Clare Type 1 Diabetes Support Group can be contacted on telephone number 087 641 5747 or email: clarebranchdfi@gmail.com


  • Registered Users Posts: 499 ✭✭graflynn


    ​The next meeting of the Clare Type 1 Diabetes Support group takes place on​ Tuesday 20th October at 8pm in The Temple Gate Hotel, Ennis.

    ​This meeting is an informal group of adults with type 1 diabetes and parents of children with type 1 diabetes. We share information about living with Type 1 diabetes and our life experiences to learn from each other. The Clare Type 1 Diabetes Support Group can be contacted on telephone number 087 641 5747 or email: clarebranchdfi@gmail.com


  • Registered Users Posts: 499 ✭✭graflynn


    Over the past 12 months I have gathered information that I have come across for diabetes support groups all over the country. Most of them have face to face meetings.

    We have lots of online support groups these day (thank god) but sometimes nothing beats a good old fashioned cuppa & chat. So here it is;
    List of Diabetes Support Groups

    If you attend a diabetes support group that I do not have on this list, please send me an email with who I should contact to get details of that group and I will include them also.


  • Registered Users Posts: 499 ✭✭graflynn


    Clare Type 1 Diabetes Support.

    The next meeting of the Clare Type 1 Diabetes Support group takes place on Tuesday 15th December at 8pm in The Temple Gate Hotel, Ennis.

    This meeting is an informal group of adults with type 1 diabetes and parents of children with diabetes. We share information about living with Type 1 diabetes and our life experiences to learn from each other.​ Our topic in December will be discussing ​Type 1 Diabetes through the decades, inspired by Gary scheiner's book Think like a Pancreas. Some of our group have been thriving with T1D for 50+ years ​and have a experienced a lot of the changes in diabetes treatment.

    Anyone who would like to learn about type 1 diabetes or who uses intensive insulin therapy are welcome. ​The Clare Type 1 Diabetes Support Group can be contacted on telephone number 087 654 8320 or email: clarebranchdfi@gmail.com


  • Registered Users Posts: 499 ✭✭graflynn


    Clare Type 1 Diabetes Meetup.

    The next meeting of the Clare Type 1 Diabetes Support group takes place on Tuesday 16th February at 8pm in The Temple Gate Hotel, Ennis.

    This meeting is an informal group of adults with type 1 diabetes and parents of children with diabetes. We share information about living with Type 1 diabetes and our life experiences to learn from each other.

    The Clare Type 1 Diabetes Support Group can be contacted by email: clarebranchdfi@gmail.com


  • Registered Users Posts: 499 ✭✭graflynn


    My Animas rep called me this week to let me know that my Dexcom sensors are finally available as a Special Product on the LTI scheme. The only became approved on the Special Product list at the end of January so things might be a bit slow to start.

    Also, someone in one of the facebook groups that VHI has a Medical Appliance claim form and that Blood Glucose meters were covered on it, technically CGM's are BG monitors so it might be worth a shot for anyone on a VHI plan to test out if you can get one this way?


  • Registered Users Posts: 122 ✭✭philten


    thats good news - So if i can get the Dexcom privately or otherwise, the sensors would be covered on the LTI?


  • Registered Users Posts: 3,274 ✭✭✭cocker5


    graflynn wrote: »
    My Animas rep called me this week to let me know that my Dexcom sensors are finally available as a Special Product on the LTI scheme. The only became approved on the Special Product list at the end of January so things might be a bit slow to start.

    Also, someone in one of the facebook groups that VHI has a Medical Appliance claim form and that Blood Glucose meters were covered on it, technically CGM's are BG monitors so it might be worth a shot for anyone on a VHI plan to test out if you can get one this way?

    wow thats is excellent news!! my other half has been using the Dexcom for over 2 years now and wouldn't be without it... now just to try and get them to add to his prescription.... hmmmm that's a challenge


  • Registered Users Posts: 3,274 ✭✭✭cocker5


    philten wrote: »
    thats good news - So if i can get the Dexcom privately or otherwise, the sensors would be covered on the LTI?

    ONLY if you can get them to agree to pay for them... they are not seen as a necessity :mad:


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  • Registered Users Posts: 499 ✭✭graflynn


    Our next meeting takes place on Tuesday 19th April at 8pm in The Temple Gate Hotel, Ennis. The topic of this meeting is "Type 1 Diabetes & Living with Complications".

    Our guest speaker is AineMae O'Mahony who has lived with type 1 diabetes for 25 years, ​and lost her sight at the age of 26. She ​is the​ manager of community radio station, Radio Corca Baiscinn, in Loop Head, Co Clare, managing 25 members of staff and volunteers. ​She appeared on The Late Late Show last November to promote the work she does with Fighting Blindness and is truly an inspirational person.

    IMPORTANT: This meeting will focus on how the complications of type 1 diabetes are not a sign of failure. That by talking about the the complications of diabetes make them less threatening and pretending they don't exist doesn't help any of us. I found this really interesting story on Scot's Diabetes Blog from two very different perspectives.

    ​Here are some articles that I found about AineMae;​
    https://vispaireland.wordpress.com/2011/10/10/personal-story-of-aine-mae-o-mahony-from-lahinch-co-clare/
    http://www.fightingblindness.ie/retina-2015-speaker-aine-mae-omahony/
    http://www.independent.ie/life/health-wellbeing/health-features/i-noticed-the-speck-in-my-right-eye-in-2006-and-within-a-year-i-was-blind-34155559.html

    This meeting is an informal group of adults with type 1 diabetes and parents of children with diabetes. We share information about living with Type 1 diabetes and our life experiences to learn from each other.​ The Clare Type 1 Diabetes Support Group can be contacted on telephone number 087 6548320 or email: clarebranchdfi@gmail.com

    ​I really hope that you can join us!


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