[CathyMoran]

Originally Posted by ants09

Right what happen in relation to graves ? was on eltroxin 5 mg per day and now on neomercazol 15mg per day

Sorry, I was very young when I had it(2-4), the thyroid went underactive later. Iremember being in hospital and them saying to my parents about it but not much else. I missed most of jr infants.

[ants09]

Originally Posted by CathyMoran

Sorry, I was very young when I had it(2-4), the thyroid went underactive later. Iremember being in hospital and them saying to my parents about it but not much else. I missed most of jr infants.

Thanks

[CathyMoran]

I can ask, my daddy had the surgery when he was 24 as did many of my aunts and uncles. Doh, I do know that I went underactive afterwards.

[ants09]

Originally Posted by CathyMoran

I can ask, my daddy had the surgery when he was 24 as did many of my aunts and uncles. Doh, I do know that I went underactive afterwards.

that be fantastic if you wouldnt mind

[cyning]

I have Graves. I was diagnosed at 16 and was hospitalised was taking neomercazole and inderal to deal with the palpitations. I had weekly blood tests for 3 months and monthly ones then for a year and every 3 months after that. I was taken off them when I was 19 and immediately went very over active. They dont leave you on neomercazole long term particularly not if your a woman who may have kids in the future/now. Symptoms wise I had palpitations, panic attacks, fainting, rapid weight gain (unusual but can in rare occasions happen), and a massive appetite. Insomnia, twitching and quite hyper in general. I was put back on neomercazole and inderal and propylthiouricil (sp?). I got radioactive iodine. That was totally painless had to avoid kids and pregnant people for a few days!

After that I went underactive. Being underactive isn't easy but I would take been underactive any day of the week over been over active. I'm 27 now and finally seem to be symptom free (touch wood and all that)!

[ants09]

Originally Posted by cyning

I have Graves. I was diagnosed at 16 and was hospitalised was taking neomercazole and inderal to deal with the palpitations. I had weekly blood tests for 3 months and monthly ones then for a year and every 3 months after that. I was taken off them when I was 19 and immediately went very over active. They dont leave you on neomercazole long term particularly not if your a woman who may have kids in the future/now. Symptoms wise I had palpitations, panic attacks, fainting, rapid weight gain (unusual but can in rare occasions happen), and a massive appetite. Insomnia, twitching and quite hyper in general. I was put back on neomercazole and inderal and propylthiouricil (sp?). I got radioactive iodine. That was totally painless had to avoid kids and pregnant people for a few days!

After that I went underactive. Being underactive isn't easy but I would take been underactive any day of the week over been over active. I'm 27 now and finally seem to be symptom free (touch wood and all that)!

In relation to graves did you have a operation? And do you still suffer from it or get any complications from it?

[cyning]

Originally Posted by ants09

In relation to graves did you have a operation? And do you still suffer from it or get any complications from it?

Well the graves is in essence too much thyroid hormone being produced. So when I had the radioactive iodine (its just a tablet) it kills off the thyroid gland so that makes you underactive then. I don't think surgery is the preferred option because there are other risks associated with it. Ill always have a dx of graves so say when I was pregnant I had antibody levels checked to see risk to babs etc. The complications are that you go underactive which then brings its own problems. None as severe as being over active. A few in my family have graves aswell none have had any issues regulating their thyroids after. Have you been referred to an endo?

[ants09]

Originally Posted by cyning

Well the graves is in essence too much thyroid hormone being produced. So when I had the radioactive iodine (its just a tablet) it kills off the thyroid gland so that makes you underactive then. I don't think surgery is the preferred option because there are other risks associated with it. Ill always have a dx of graves so say when I was pregnant I had antibody levels checked to see risk to babs etc. The complications are that you go underactive which then brings its own problems. None as severe as being over active. A few in my family have graves aswell none have had any issues regulating their thyroids after. Have you been referred to an endo?

Already seeing a endo. And eye doctor in relation to graves.
Why you say I don't think surgury .... other risk associated with it?

[CathyMoran]

Originally Posted by ants09

Already seeing a endo. And eye doctor in relation to graves.
Why you say I don't think surgury .... other risk associated with it?

I would have prefered the surgery, less issues from what I can see.

[cyning]

Originally Posted by ants09

Already seeing a endo. And eye doctor in relation to graves.
Why you say I don't think surgury .... other risk associated with it?

Because with surgery they are operating on your neck. There is a real risk of damage to the parathyroid glands which can cause lifelong issues with hypoparathyroidism as well as hypothyroidism. There is also the risk of damage to your vocal chords which can leave you permanently hoarse. Add into that you will be recovering from major surgery on your neck. I got my RAI done in Galway they wouldn't even consider surgery I asked was it a better option when they explained why they don't routinely do it I totally agreed with them. I get keloid scarring too so definitely didn't want that on my neck! I think there's far more issues with surgery than RAI to me anyway. Obviously there are times when surgery is the preferred option too

I had the popping eyes and a goitre too. The eyes went mostly away and so did the goitre.

[ants09]

Originally Posted by cyning

Because with surgery they are operating on your neck. There is a real risk of damage to the parathyroid glands which can cause lifelong issues with hypoparathyroidism as well as hypothyroidism. There is also the risk of damage to your vocal chords which can leave you permanently hoarse. Add into that you will be recovering from major surgery on your neck. I got my RAI done in Galway they wouldn't even consider surgery I asked was it a better option when they explained why they don't routinely do it I totally agreed with them. I get keloid scarring too so definitely didn't want that on my neck! I think there's far more issues with surgery than RAI to me anyway. Obviously there are times when surgery is the preferred option too

I had the popping eyes and a goitre too. The eyes went mostly away and so did the goitre.

Originally Posted by CathyMoran

I would have prefered the surgery, less issues from what I can see.

I not talking about surgery in relation to hyper thyroid. i talking in relation to graves and on the eye's

[cyning]

Originally Posted by ants09

I not talking about surgery in relation to hyper thyroid. i talking in relation to graves and on the eye's

Ok but Graves is generally hyperthyroid and everything else generally considered side effects.

I haven't had surgery or anything else on my eyes when my thyroid came under control my eyes "fixed" themselves.

[dollydishmop]

I have Grave's and had TT surgery in 2010.

I had exopthalmia in both eyes, more so in my right eye.

After my TT my eyes vastly improved. Left eye is virtually normal now, and right eye only noticeable now if you're really looking for differences. I have my eyes 'measured' once a year now.
They still water up for no apparent reason, and go dry at times too...but they are far less 'bulgy'.

However, I also know of others who've had thyroid/goitre surgery, who have still required orbital decompression afterwards.

YMMV