Psoriasis

Gael23 · 26-11-2018 6:50pm

rizzee wrote: »

Had a heavy session in Manchester the weekend. Woke up this morning very dry on scalp, eyebrows, ears. Did the weekly Nizoral in the shower followed by Daktacort or the eyebrows and ears. Dryness gone instantly with only some light red marks left over. Now to get hydrated and stay good til Christmas...

I use TGel and I find it great, it’s cheaper than Nizoral also.

rizzee · 26-11-2018 8:15pm

Gael23 wrote: »

I use TGel and I find it great, it’s cheaper than Nizoral also.

I tried that a couple of years ago and changed it up for Elave as I was using it quite frequently. It was a yellowish colour but I vaguely remember a reddish coloured one available in shops too?

dastardly00 · 03-12-2018 1:16pm

rizzee wrote: »

I tried that a couple of years ago and changed it up for Elave as I was using it quite frequently. It was a yellowish colour but I vaguely remember a reddish coloured one available in shops too?

The reddish coloured T/Gel has coal tar extract in it.

Phil1969 · 03-12-2018 4:33pm

mighty magpie wrote: »

Hi folks.

My psoriasis has been pretty bad around my ears and eyes recently. No amount of moisturising was helping. Switched from e45 to aveeno helped a bit.

Booked myself in with GP, didn't know what to prescribe straight away and wanted to look through my history before doing so. I told him protopic worked well before.

He called the next day and said he couldn't prescribe protopic on his license as only a dermatologist could. He has prescribed hydrocortisone 1% for my eyes but only for 5 days. Betnovate 0.025% for my ears and other areas around my face where stubble is. Again 5 days but can apply twice a day.

I'm worried I've done damage to my eyes using stronger stuff on them during teenage years so I'm just on here to ask for some advice on the 2 creams mentioned above. I'm 3 days in and I can see some improve but are these creams ok over 5 days? What about long term use?

Thanks
MM

I have used scalp applcation (betnovate) for over 20 years, I use it very sparingly and most use it in the groin area (in creases top of inside leg). And, it helps a lot when things like creams/lotions do no work down there. I probably use it twice a month, maybe around 4-5 drops each leg. I have no ill effects from it.

On another note, I have just come back from 3 weeks in the sun, I made sure I spent time in the sun as I know for sure the sun is the best way to clear my P. It cleared up loads over the 3 weeks, and cleared on my arms more or less completed. After only 3 weeks back, it is already starting to come back. I really need to find somewhere that has sun pods here in Wexford!

Phil1969 · 03-12-2018 4:36pm

I have been waiting to see a dermo for over 5 mths, I was not so bothered about it for my P but was told my GP that seeing the dermo would also help with my arthritis. I presume my GP thinks I have Psoriatic arthritis, does anyone else have this and found the dermo has helped it?

eeloe · 03-12-2018 4:58pm

Phil1969 wrote: »

I have been waiting to see a dermo for over 5 mths, I was not so bothered about it for my P but was told my GP that seeing the dermo would also help with my arthritis. I presume my GP thinks I have Psoriatic arthritis, does anyone else have this and found the dermo has helped it?

The reason for this is basically the meds for P and Arthritis are basically the same, so seeing a derm will fast track the process of getting treatment, a biologic will treat your psoriasis and at the same time help with arthritis.

Gael23 · 03-12-2018 9:50pm

eeloe wrote: »

The reason for this is basically the meds for P and Arthritis are basically the same, so seeing a derm will fast track the process of getting treatment, a biologic will treat your psoriasis and at the same time help with arthritis.

Just to add to this, arthritis is a common thing to happen to Psoriasis patients, particularly if you have Psoriasis on the joints.
Phil1969, I’m making an assumption that seen as your waiting that long you are on a public waiting list. If it is any way possible I would encourage you to be referred privately. There’s a good chance that another 5 months will pass and you won’t be seen otherwise.

eeloe · 04-12-2018 1:30am

Best 200-250 you’ll ever spend going privately.

I’d beg borrow or steal the money if I had to!

qo2cj1dsne8y4k · 04-12-2018 1:50am

Very deflated. Despite being on my meds and seeing an improvement in my joints that were initially the problem, the joints on the other side of my body are now becoming bad. I’m wondering why am I even poisoning myself at this rate

Phil1969 · 04-12-2018 8:50am

eeloe wrote: »

The reason for this is basically the meds for P and Arthritis are basically the same, so seeing a derm will fast track the process of getting treatment, a biologic will treat your psoriasis and at the same time help with arthritis.

Thanks, that is good to know, my arthritis seems to be getting worse so hopefully derm can help.

eeloe · 04-12-2018 9:54am

Grace Thoughtless Mortal wrote: »

Very deflated. Despite being on my meds and seeing an improvement in my joints that were initially the problem, the joints on the other side of my body are now becoming bad. I’m wondering why am I even poisoning myself at this rate

Try to stay positive, when are you seeing your derm next? There are other options, don't let this just be the one treatment for you.

eeloe · 04-12-2018 9:56am

Hard to believe it's been 10 weeks since i started(11 this Thursday) but here we are.

Are you can see from the picture, i can safely say i'm about 99% clear at this stage, which is pretty damn amazing.

Few things i'm noticing tho, it's taking me a LOT longer to recover after training than it did before, might just be that we're coming in to the colder weather also...we'll keep an eye on it as time goes on.

eeloe · 05-12-2018 4:41pm

Elbow update.

wonga77 · 05-12-2018 11:40pm

I always assumed that P would destroy tattoos if it ever cleared up

rizzee · 06-12-2018 12:25am

wonga77 wrote: »

I always assumed that P would destroy tattoos if it ever cleared up

It's a layer on top of the skin, not the skin itself

Phil1969 · 06-12-2018 9:00pm

Gael23 wrote: »

Just to add to this, arthritis is a common thing to happen to Psoriasis patients, particularly if you have Psoriasis on the joints.
Phil1969, I’m making an assumption that seen as your waiting that long you are on a public waiting list. If it is any way possible I would encourage you to be referred privately. There’s a good chance that another 5 months will pass and you won’t be seen otherwise.

Sorry for late reply, my wife is in hospital so been back and forwards with a lot waiting around.

I do not have P and my joints apart from a bit on my elbows but my hips and knees have a lot of pain in them. I struggle to walk many days too, worse in the mornings. The pain also seems to radiate down my legs. I also get it sometimes in my forearms and right shoulder altho not as bad as legs/hips.

I am not so bothered about the P, I can live with that but the arthritis is getting worse and is bad worse in the cold weather.

I will look in to finding a dermo to go private, I live in Wexford and was told nearest is Waterford. I am in the Mater regularly for my wife so may look into that. Any advice on finding a dermo privately?

Thanks

Phil1969 · 06-12-2018 9:07pm

eeloe wrote: »

Best 200-250 you’ll ever spend going privately.

I’d beg borrow or steal the money if I had to!

Thanks eeloe, do you really think a dermo make that much difference? I have never had much faith with doctors especially GPs. It sounds like it my be worth going private. You say around 200-250 but I would presume it would take multiple visits so it would cost that much multiple times. Anyway, I will check it out.

Thanks

eeloe · 07-12-2018 12:57am

I’m seeing Prof.Brian Kirby, in St.Vincents Private, so far i’ve only seen him once, and at this point in time i’m 99% clear of psoriasis.

Best €250 I’ve ever spent.

Phil1969 · 07-12-2018 11:11am

eeloe wrote: »

I’m seeing Prof.Brian Kirby, in St.Vincents Private, so far i’ve only seen him once, and at this point in time i’m 99% clear of psoriasis.

Best €250 I’ve ever spent.

That sounds great, your photos show amazing improvement. Congrats on that, you must be feeling great about it.

Did you or have you had trouble with arthritis too? My arthritis is more of a concern but it would be great to get clear of the P too.

I will check out Prof. Brian Kirby and see if I can arrange to see him, I presume that is Dublin? Do you mind telling me what medication he prescribes? Maybe I should ask if he would recommend the same to me, especially if it helps with arthritis too.

Cheers for the information, that gives me some hope

eeloe · 07-12-2018 12:16pm

I don’t suffer from arthritis, I do have some tendinitis and a dodgy knee but i’m just putting that down to training at the moment.

It’s impossible to say what he will prescribe for you, as everyone is different and the only person who can call what medication you’re going to end up on is the specialist you see.

Yes he’s in St.Vincents in Dublin, he’s the nicest man I’ve ever spoken to, he listens to absolutely everything before he even says a word, and he doesn’t try and put down any of your symptoms.

Gael23 · 07-12-2018 7:32pm

Phil1969 wrote: »

That sounds great, your photos show amazing improvement. Congrats on that, you must be feeling great about it.

Did you or have you had trouble with arthritis too? My arthritis is more of a concern but it would be great to get clear of the P too.

I will check out Prof. Brian Kirby and see if I can arrange to see him, I presume that is Dublin? Do you mind telling me what medication he prescribes? Maybe I should ask if he would recommend the same to me, especially if it helps with arthritis too.

Cheers for the information, that gives me some hope

You would need to go back to your GP and get a new referral. What medication you get depends on loads of things from creams to injections which I'm on. Second and subsequent visits are half price with him.
Do you have more arthritis or psoriasis? If its arthritis a dermatologist isn't the right person to see.

Chacha97 · 08-12-2018 11:12am

Hi I know it's prob been said, but does anyone have good face moisturizer suggestions non steroid? Starting to break out on forehead red flare so looking for something to help. Thanks

Gael23 · 08-12-2018 4:19pm

Chacha97 wrote: »

Hi I know it's prob been said, but does anyone have good face moisturizer suggestions non steroid? Starting to break out on forehead red flare so looking for something to help. Thanks

I use this one. It’s only €18 and it works for me anyway
https://www.laroche-posay.ie/nutritic-intense-for-dry-skin

Chacha97 · 09-12-2018 10:24am

Gael23 wrote: »

I use this one. It’s only €18 and it works for me anyway
https://www.laroche-posay.ie/nutritic-intense-for-dry-skin

Perfect thanks I'll give it a shot!

Gael23 · 10-12-2018 11:34pm

Not doing so good.
I may be panicking a bit too soon but while the Humira works a treat for my Chrons Disease, I don’t feel it’s working for my Psoriasis as well.
Thankfully I’ve an appointment with Prof Kirby next week so we’ll see. I know it’s winter and I’ve got a good bit of stress in my life so I might be worrying needlessly but I’m not convinced Humira is working.

brevity · 11-12-2018 12:11am

Mine seems to be coming back in parts as well. I think they need to up my stelara dose.

Phil1969 · 11-12-2018 11:29am

Gael23 wrote: »

You would need to go back to your GP and get a new referral. What medication you get depends on loads of things from creams to injections which I'm on. Second and subsequent visits are half price with him.
Do you have more arthritis or psoriasis? If its arthritis a dermatologist isn't the right person to see.

Thanks Gael23.

Ah, so I need to get a referral from GP to see a private dermo? I wonder if there are any in Wexford, it would be easier for me but if not then Prof. Kirby sounds great.

My arthritis bothers me a lot more than my psoriasis but I do have a fair bit of psoriasis on my legs and my scalp which is completely covered. I also expect my arms to be covered shortly as the weather gets colder, I recently had 3 weeks in the sun where the psoriasis almost cleared (not on scalp) but it is quickly coming back. I have seen many doctors over the past 30 years for psoriasis and I have seen a few over the last 7-8 years for what I have been told is arthritis, although I have never been tested (if there is a test). I have had little faith in doctors over the years, nothing has worked, only the sun has helped my psoriasis. Mind you, I have never been referred to a dermo in all that time until now.

My GP referred me to the dermo, he said the dermo will help with my arthritis too as he says it is all related.

eeloe · 11-12-2018 12:01pm

Gael23 wrote: »

Not doing so good.
I may be panicking a bit too soon but while the Humira works a treat for my Chrons Disease, I don’t feel it’s working for my Psoriasis as well.
Thankfully I’ve an appointment with Prof Kirby next week so we’ll see. I know it’s winter and I’ve got a good bit of stress in my life so I might be worrying needlessly but I’m not convinced Humira is working.

brevity wrote: »

Mine seems to be coming back in parts as well. I think they need to up my stelara dose.

Try not to panic boys, hopefully you both get sorted soon. Stress seems too be a major thing for me too by the looks of it, stressed out of my head trying to sort christmas, and a couple of other things happening too, and my skin seems to be going a little bit dry, and i'm full sure i can see a couple of patches re-appearing. tiny in comparison to what i did have, but it's never easy seeing it come back after it was gone.

First maintenance dose Jan 10th, so we'll see from there i guess.

Phil1969 wrote: »

Thanks Gael23.

Ah, so I need to get a referral from GP to see a private dermo? I wonder if there are any in Wexford, it would be easier for me but if not then Prof. Kirby sounds great.

My arthritis bothers me a lot more than my psoriasis but I do have a fair bit of psoriasis on my legs and my scalp which is completely covered. I also expect my arms to be covered shortly as the weather gets colder, I recently had 3 weeks in the sun where the psoriasis almost cleared (not on scalp) but it is quickly coming back. I have seen many doctors over the past 30 years for psoriasis and I have seen a few over the last 7-8 years for what I have been told is arthritis, although I have never been tested (if there is a test). I have had little faith in doctors over the years, nothing has worked, only the sun has helped my psoriasis. Mind you, I have never been referred to a dermo in all that time until now.

My GP referred me to the dermo, he said the dermo will help with my arthritis too as he says it is all related.

There's an inflammation blood test that can show signs of osteo and rheumatoid arthritis, as far as i know, PsA isn't shown in a blood test, the same way you could be covered in psoriasis and it wouldn't show in a blood test, even tho you can clearly see it on your skin.

Did you GP refer you privately, or publicly?

Phil1969 · 13-12-2018 10:04am

eeloe wrote: »

Try not to panic boys, hopefully you both get sorted soon. Stress seems too be a major thing for me too by the looks of it, stressed out of my head trying to sort christmas, and a couple of other things happening too, and my skin seems to be going a little bit dry, and i'm full sure i can see a couple of patches re-appearing. tiny in comparison to what i did have, but it's never easy seeing it come back after it was gone.

First maintenance dose Jan 10th, so we'll see from there i guess.

There's an inflammation blood test that can show signs of osteo and rheumatoid arthritis, as far as i know, PsA isn't shown in a blood test, the same way you could be covered in psoriasis and it wouldn't show in a blood test, even tho you can clearly see it on your skin.

Did you GP refer you privately, or publicly?

Thanks again. The give me a blood test for RA but it showed up negative, although strangely I was "negative now" meaning it could show positive later or that how it came across. But yeah, I have been reading that PsA does not show in a blood test which must be why he referred me as he does not know. My GP referred my publicly, he never mentioned I could be referred privately.

Thanks again.

mighty magpie · 13-12-2018 12:02pm

Anyone here tried Estilar? In a spray bottle and comes out like shaving foam?

I've been using it since sunday on my back (20-30 small areas) each night and the results are amazing, 4 days in out of a prescribed 4 weeks. Skin is so smooth and redness is down hugely.

I think it is similar to dovobet but with better results in testing from what i've read.

Psoriasis

Comments