thyroid issue

Hi Audry

I was Graves/Hyper up until the end of May 2010, when I had a total thyroidectomy

What you have described is very similar to my first few months on Neomercazole (carbimazole). For me, it took a long time to get the dose right, and until we got even some semblence of control it was a total rollercoaster of hell, flipping from hyper to hypo and back again...I won't sugar-coat it

I can't tell when you're going to feel better, I only wish I could {{{hugs}}}

...we're all different...and in the early days for me, it was really hard to know when I did feel well, maybe you can relate to this, but I'd spent so many years feeling unwell, that feeling unwell became the 'norm'....so when I did start feeling better i didn't instantly recognise it as feeling better, as it felt very different to how I'd felt for a very long time!

Are your symptoms down to the thyroid or the carbimazole (CBZ)?...call me cynical, but I personally blame *everything* on my thyroid...or at least I used to, when I had one People often hugely underestimate how important the thyroid gland is in everyday life. Its essentially second in command to the pituitary gland, and is involved with almost every life process to some degree. When it goes a little wonky...well, it can make life hell in the most surprising ways!
Regarding your weight gain....if I can give you any advice at all...it would be not to worry about your weight too much, until your levels are back under control...because until then, as long as you're eating healthily and exercising as best you are able, you won't have much control over your weight, you're thyroid gland will be calling the shots!
Regarding exercise...make the most of the good days...because on the bad days, you just won't be able for it...don't push yourself.

I would definitely recommend keeping a diary of symptoms and your mood etc.
And keeping copies of all your blood tests (as well as teaching yourself how to read them and understand them, with regard to how you're feeling) and if you're handy with MS Excel you can do up some nifty graphs to show how your levels fluctuate from bloodtest to bloodtest, another great way for you to be able to monitor which CBZ dose suits you best.

I really hope they get your levels sorted soon, and you start to feel well again.

Hi Lip gloss

Hope you managed to get your bloods results back today, and perhaps were able to discuss your latest concerns with your doc.

I have at various points experienced all those symptoms...when both hypo & hyper.

I used to swing quite regularly between both states,and got quite goodat predicting my blood test results. Fingers crossed yours come back good, or at least with some definite indications to someway to explain your new symptoms.

lip gloss wrote: »

thank you, no results back yet Wed.

Any news?

dollydishmop wrote: »

Any news?

Hi Dollydishmop, thanks for all your support. I finally got my results
on friday. It appears that i have gone from under active to over active.
I have to reduce my meds and go back in 6 weeks for another check.
I am already feeling better.
Thanks again.

Good luck next. I hope you get good results.