New to V B12 Deficiency

hennamak09 · 26-08-2015 12:46pm #1

Recently been diagnosed with a B12 deficiency and high cholesterol. I a young woman with 2 kids , I am 37 years of age. I have started my injections this week, i feel so tired drained an no energy and I go to the gym 3 time a week with a PT. I have been getting fierce palps too with dizzy spells.
Some days are worse than others, but his week I really feel sluggish. This is all new to me, anyone else experiencing these symptoms?

FluffyAngel · 27-08-2015 12:08am

hennamak09 wrote: »

Recently been diagnosed with a B12 deficiency and high cholesterol. I a young woman with 2 kids , I am 37 years of age. I have started my injections this week, i feel so tired drained an no energy and I go to the gym 3 time a week with a PT. I have been getting fierce palps too with dizzy spells.
Some days are worse than others, but his week I really feel sluggish. This is all new to me, anyone else experiencing these symptoms?

yes ,all very familiar..give your self time to rebuild your body and be gentle
you can get b12 from a lot of different sources and health food shops have a wide range of supplments to help you along

hennamak09 · 27-08-2015 12:23pm

Thanks for the reply, it is strange s I have been feeling unwell for the past year, with other issues, this has been happening that long to me, and it was always put down to weight not eating the right foods so on so forth. So I lost 2 stone eat the right foods and have a personal trainer 3 times a week. Symptoms got worse and eventually took blood, hey presto result.

Seeing a heart specialist for precaution more so as My father died a young man from heart attack, also my brother had one when he was 35, heart issues are in my family so now they are checking everything. ( I am happy with that )

The feeling is not nice at all its like my head is always in a race lol

The_Conductor · 14-09-2015 11:51am

I take B12 by injection- and to be honest with you- feel like crap for at least 3-4 days after each injection (as opposed by feeling exhausted- which I feel the entire time). The injections do work- you have to give them a chance though- its not a magic bullet- and if you're like me- they may make you feel worse before you feel the benefit of them.

If you're on B12- its entirely possible that you may be low on other things too- I normally get an iron studies done along with the folate blood test- as my ferretin falls off the chart (which necessitates venefer/ferretin to bring it back up again). I'm not suggesting you're the same- but it would be a good idea to get broad spectrum blood tests done by your GP to keep an eye on your levels of other micronutrients/elements/iron etc- as if you're low in one thing, its entirely possible you could be low in something else too.

hennamak09 · 14-09-2015 12:03pm

Wow ok thanks for the help - getting my fourth shot this week , and still feel no better - always tired

Heart specialist said that the heart is good for now, but did show signs of shot tacky cardic which I prob knew be there anyway

on the right track but I feel it will be a lengthy process

Will look into that more, thanks again for advice

jokettle · 20-09-2015 9:51am

I'm taking b12 shots for the first time too, and felt awful for 3-5 days after my fourth dose. When I went back for the fifth I mentioned this to the nurse and she was really surprised. I've to phone them tomorrow to tell them if the fifth shot had the same effect (for whatever reason, it didn't hit me as hard!). I'm not sure exactly what that all means. Even if the fifth dose had floored me, they'd still have to administer the prescribed doses. It might be worth mentioning it to your doc just to be safe.

With any luck my next bloods will come back clear and I'll have no more injections in my future. Those things HURT.

HairMare · 20-09-2015 9:58am

B12 deficiency never fully goes,if you have deficiency it means your not absorbing naturally, which means supplements etc generally dont help. Injection only option. This thread reminding me to get my levels checked. I found tiredness, bad dizzy spells and very poor concentration my main signs. Never h had a bad reaction from shots though

hennamak09 · 20-09-2015 9:58am

jokettle wrote: »

I'm taking b12 shots for the first time too, and felt awful for 3-5 days after my fourth dose. When I went back for the fifth I mentioned this to the nurse and she was really surprised. I've to phone them tomorrow to tell them if the fifth shot had the same effect (for whatever reason, it didn't hit me as hard!). I'm not sure exactly what that all means. Even if the fifth dose had floored me, they'd still have to administer the prescribed doses. It might be worth mentioning it to your doc just to be safe.

With any luck my next bloods will come back clear and I'll have no more injections in my future. Those things HURT.

They do hurt to be fair well it's a stinging sensation more so than anything . I will be taking my 5th one on Wednesday and bloods to be taken too. I'm after getting 2 chest infections since I started these injections and being honest I feel worse than I ever did. Apparently I should feel a boost by now but I don't I feel tired and miserable

amdublin · 20-09-2015 10:01am

Aww I hope you feel better soon. My mother has this injections and they do take a few days to kick in.

What is shot tacky cardic?

The_Conductor · 20-09-2015 10:01am

My haematologist said its actually quite normal for a sizeable proportion of people to have an adverse reaction of the B12- and he also said its the sort of thing that you develop over time. Aka- you may be fine at the beginning- but as you progress with your treatment you develop a sensitivity to it. I was talking about this with one of the student researchers- and she said it could well be the cyano suspension the B12 is in- which you break down over the course of time- to make the B12 injection a slow release injection. There are different suspensions available- though I was never offered an alternate. If the reaction isn't such that it would preclude you taking the B12- they just tend to go ahead, come what may.

I also get a reaction to the venefer- however, its a far obvious and dangerous reaction (swelling of the airways etc)- which necessitates a hydrocortisone and antihistamine pre-med an hour beforehand- and a much slower drip than is normal.

If you get an adverse reaction to the Cytamen/Neocytamen- it is the sort of thing that your haematologist needs to be aware of- however- it is not necessary going to preclude you continuing with the course of B12 (which may in itself be indefinite in nature).

hennamak09 · 20-09-2015 10:03am

HairMare wrote: »

B12 deficiency never fully goes,if you have deficiency it means your not absorbing naturally, which means supplements etc generally dont help. Injection only option. This thread reminding me to get my levels checked. I found tiredness, bad dizzy spells and very poor concentration my main signs. Never h had a bad reaction from shots though

Very very tired and as you said concentration levels are very minimum indeed... Fierce palps too. I will know more in a week as bloods been taken Wednesday , my levels were low enough to be fair so hopefully they have rises some what

HairMare · 20-09-2015 10:08am

[quote="hennamak09;970th4 and as you said concentration levels are very minimum indeed... Fierce palps too. I will know more in a week as bloods been taken Wednesday , my levels were low enough to be fair so hopefully they have rises some what

[/quote]

I havent had a prob since galbladder removed, whether there is a link I don't know. But must remember to get levels checked regardless, I noticed doctors slower to get. Bloods done since Im a mc patient rather than private, my leve

HairMare · 20-09-2015 10:08am

Levels used to be threw the floor

hennamak09 · 20-09-2015 10:09am

amdublin wrote: »

Aww I hope you feel better soon. My mother has this injections and they do take a few days to kick in.

What is shot tachy cardic?

Just noticed my spelling mistake it should say signs of short tacky cardic. I too asked what this was its when the blood reaches the heart and skips a bit it pushes extra amount of blood through this is why we experience palps dizzy spells, so in time apparently I will have to get an angiogram done as its my destiny lol family history etc etc
5 weeks on these things now an I feel worse not better

hennamak09 · 20-09-2015 10:10am

HairMare wrote: »

Levels used to be threw the floor

What is a normal level ??

amdublin · 20-09-2015 10:11am

hennamak09 wrote: »

Heart specialist said that the heart is good for now, but did show signs of shot tacky cardic which I prob knew be there anyway

on the right track but I feel it will be a lengthy process

Will look into that more, thanks again for advice

What is this shot tacky cardic? I have never heard of it.

HairMare · 20-09-2015 10:11am

I think 200 to 400, I think I dropped below fifty at one point.

hennamak09 · 20-09-2015 10:14am

HairMare wrote: »

I think 200 to 400, I think I dropped below fifty at one point.

Ya I was thinking that also, mine was at 63/66 can't remember , I just hope this time it's rising , I feel so guilty being sick all the time can't breath with these chest infections it's a killer I swear

hennamak09 · 20-09-2015 10:16am

amdublin wrote: »

What is this shot tacky cardic? I have never heard of it.

Sorry my soldering is terrible quoted it above , just silly spelling mistakes , the joys of having a bad chest

amdublin · 20-09-2015 10:20am

hennamak09 wrote: »

Sorry my soldering is terrible quoted it above , just silly spelling mistakes , the joys of having a bad chest

Your grand don't worry about the spelling

But what do you actually have?? I am confused

HairMare · 20-09-2015 10:24am

hennamak09 wrote: »

Ya I was thinking that also, mine was at 63/66 can't remember , I just hope this time it's rising , I feel so guilty being sick all the time can't breath with these chest infections it's a killer I swear

Did a quick google, your levels apparently should be over 4oo/550 to be healthy range. 60 odd is very low. My folic acid was low last time too. Cant remember when last checked

hennamak09 · 20-09-2015 10:27am

amdublin wrote: »

Your grand don't worry about the spelling

But what do you actually have?? I am confused

So there is a few things going on with me. I have low B12 so getting the injections for this then I was experiencing pains in the chest with palps . Fitted with a holten monitor where they done readings of the heart, at times it showed that my heart was beating faster than it should be, it felt as if it was going to jump out of chest , doc said that the heart is working harder to pump blood as its missing a beat, so he said that in time I will need to get a stent but in to keep valve open, I do suffer with chest infection and I'm an asthmatic I have been so bad lately really sick with everything, so hoping B12 injections will help

hennamak09 · 20-09-2015 10:30am

HairMare wrote: »

Did a quick google, your levels apparently should be over 4oo/550 to be healthy range. 60 odd is very low. My folic acid was low last time too. Cant remember when last checked

Ya it is I too checked, I'm not anaemic they said so I don't know how this is happening , thank his I went to doc when I did, it's in the family apparently all ladies that has been affected by it

so far there is 4 of us , we'll that I know of

amdublin · 20-09-2015 10:31am

Well sounds like you are getting all the right investigations and advice. Hope the b12 kicks in for you soon.

hennamak09 · 20-09-2015 10:37am

amdublin wrote: »

Well sounds like you are getting all the right investigations and advice. Hope the b12 kicks in for you soon.

Me too, but sure there is only much we are being told and the rest we learn from here the internet etc etc I am just glad I listened to my body and not fob it off

HairMare · 20-09-2015 10:37am

Your getting an awful doing, asthma and chest infection would be putting all systems under pressure. Your b12 to be at 63 would be on the decline the last few years. B12 is stored in liver.

hennamak09 · 20-09-2015 11:17am

HairMare wrote: »

Your getting an awful doing, asthma and chest infection would be putting all systems under pressure. Your b12 to be at 63 would be on the decline the last few years. B12 is stored in liver.

That's what I said to my GP for the last 2 years I have had at least 20 infections I have been complaining with acid reflux so on tabs for that too got tests done told I have a horse shoe kidney and a node in the liver right lower lobe all is good so they say , then this happens I guess as you said it's happening with a while

Skerries · 20-09-2015 11:32am

what symptoms do people get from this?
I was diagnosed about 4-5 years ago but I had no symptoms and it was picked up in a blood test but for the last year I have been feeling terrible with weakness, shortness of breath, bad chest pains and dizziness
I had several tests done, 24 hour blood pressure monitor, stress test on a running machine, CT scan and an angiogram but it all came back clear

hennamak09 · 20-09-2015 11:36am

Skerries wrote: »

what symptoms do people get from this?
I was diagnosed about 4-5 years ago but I had no symptoms and it was picked up in a blood test but for the last year I have been feeling terrible with weakness, shortness of breath, bad chest pains and dizziness
I had several tests done, 24 hour blood pressure monitor, stress test on a running machine, CT scan and an angiogram but it all came back clear

What made me go was I was getting fierce palps and it scared me, I always have shortness of breath and tired but I felt it was different this time around. Bloods were taken and low and behold my B12 was low .. It's strange that you have gotten all these tests and nothing showing up, you kinda feel like a fraud . I hope they get to the bottom of things

hennamak09 · 07-10-2015 8:46am

Well then I eventually got my B12 test result back and it is at 1500 huge difference from 63 - now i need to maintain it which is hard as i cant absorb it from my food - so i have been told i need to take a b12 complex every day - anyone on these - which are the best to use - all suggestions welcomed Regina

HairMare · 12-10-2015 12:58am

hennamak09 wrote: »

Well then I eventually got my B12 test result back and it is at 1500 huge difference from 63 - now i need to maintain it which is hard as i cant absorb it from my food - so i have been told i need to take a b12 complex every day - anyone on these - which are the best to use - all suggestions welcomed Regina

Wow thats some increase, dont know which are best or easiest absorbed as thats the big issue.

New to V B12 Deficiency

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