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Undiagnosed circle of hell.

24567…21

Comments

  • #32
    pedro ferio-vti
    Registered Users Posts: 396 ✭✭pedro ferio-vti


    havent read all the replies but have you had a comprehensive blood test? Also have you travelled abroad anywhere exotic? Africa, Thailand South America etc etc.


  • #33
    dlofnep
    Closed Accounts Posts: 20,759 ✭✭✭✭dlofnep


    pedro ferio-vti wrote: »
    havent read all the replies but have you had a comprehensive blood test? Also have you travelled abroad anywhere exotic? Africa, Thailand South America etc etc.

    Enough blood tests to fill a bathtub. And no, I didn't travel outside Ireland. I was in Portugal 2 years ago, but I've been unwell for 4 years.


  • #34
    dlofnep
    Closed Accounts Posts: 20,759 ✭✭✭✭dlofnep


    joebucks wrote: »
    Yes indeed. The only option is to explore every avenue.

    I have read that heavy metal toxicity may be a cause of this type of illness but most resources I have found on this are advocating Chelation Therapy which is something I would personally avoid.

    How will you be tested for heavy metal toxicity? Hair sample? Is your GP able to arrange this for you?
    Will you have tests done first and then have fillings removed or are you going to have fillings removed regardless.
    I also had some dental work, root canal etc ,done a good few years ago but never really considered it as a source of my current ailments. Do you have any good resources where I could read up on this.

    Anyway best of luck with all your tests.

    Gunna get tested for toxicity first, and then take it from there. Think I'll have them removed regardless, as the more I read - the better off it sounds having them replaced with white fillings. Did you have any fillings by any chance?

    Here is a paper in ridding heavy metals from your body yourself: http://www.google.ie/url?sa=t&source=web&cd=1&ved=0CBMQFjAA&url=http%3A%2F%2Fwww.neuraltherapy.com%2FNeurotoxinProtocol040406.pdf&ei=R-eTTK2YCMmR4gb0iKXTAw&usg=AFQjCNEsSmG0v33hazGZn9Xf4gFlIdMEkw&sig2=AEIuKm78awRgFTvD_JCCDw

    However, I'm going to probably get it done by a professional. Chelation therapy seems to be the only route at the moment. I found the following places that seem to either test for it, or test & perform therapy

    http://www.drummartinclinic.ie/
    http://amber.ie/therapies-available-page.html
    http://www.chelation-ireland.com/

    A GP I went to recently said that he had actually worked with heavy metals a few years back, and said that there was certainly an improvement with some individuals who went through the chelation treatment. It's worth a shot aye? Any reason why you are against it?


  • #35
    pedro ferio-vti
    Registered Users Posts: 396 ✭✭pedro ferio-vti


    If I had of even read your OP properly i'd have seen you've had bloods taken sorry =/ i'd probably go with your filling removal first and then failing that go to a different GP to get a fresh perspective. Have you ever been away far like Thailand, SA etc like 4+ years ago?


  • #36
    dlofnep
    Closed Accounts Posts: 20,759 ✭✭✭✭dlofnep


    Nope. Never. Just the States, about 8 or 9 years ago. Beyond that, nope. Doctors asked me that, and the medical assessment unit asked me it. In anycase, the did blood tests to check for pretty much everything.


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  • #37
    kangaroo
    Registered Users Posts: 651 ✭✭✭kangaroo


    Some long-term illnesses affect one's ability to work. These means that although one may have some money/assets at the start of one's illness, one won't always have that money to draw on. Which can be frustrating if something which has evidence going for it comes along and one doesn't have the money. That would be one reason why some people wouldn't try every treatment out there especially more pricey ones (some therapies can be pricey even if any one session might not be that pricey).


  • #38
    joebucks
    Closed Accounts Posts: 728 ✭✭✭joebucks


    dlofnep wrote: »
    Gunna get tested for toxicity first, and then take it from there. Think I'll have them removed regardless, as the more I read - the better off it sounds having them replaced with white fillings. Did you have any fillings by any chance?

    Here is a paper in ridding heavy metals from your body yourself: http://www.google.ie/url?sa=t&source=web&cd=1&ved=0CBMQFjAA&url=http%3A%2F%2Fwww.neuraltherapy.com%2FNeurotoxinProtocol040406.pdf&ei=R-eTTK2YCMmR4gb0iKXTAw&usg=AFQjCNEsSmG0v33hazGZn9Xf4gFlIdMEkw&sig2=AEIuKm78awRgFTvD_JCCDw

    However, I'm going to probably get it done by a professional. Chelation therapy seems to be the only route at the moment. I found the following places that seem to either test for it, or test & perform therapy

    http://www.drummartinclinic.ie/
    http://amber.ie/therapies-available-page.html
    http://www.chelation-ireland.com/

    A GP I went to recently said that he had actually worked with heavy metals a few years back, and said that there was certainly an improvement with some individuals who went through the chelation treatment. It's worth a shot aye? Any reason why you are against it?

    Thanks for the info. I'll check this stuff out.

    It's not that I'm against Chelation, it's just that it quite costly and time consuming and there is lack of evidence that it actually works. At the moment I'm just frustrated with alternative medicine as I've tried quite a few different things only to be left disappointed.

    I have a couple of mercury fillings and a couple of white crowns. I discussed this briefly my dentist before and he was off the opinion that any possible problem caused may be due to build up of bacteria around the crowns and just advised me to be vigilant with my dental hygiene which I am but makes no difference.
    However research into relationship between dental problems and overall health problems is still in it's infancy but they seem to be making progress. It is briefly mentioned in this article form the IT health section last Tues.
    http://www.irishtimes.com/newspaper/health/2010/0914/1224278818493.html


  • #39
    dlofnep
    Closed Accounts Posts: 20,759 ✭✭✭✭dlofnep


    Alot of dentists refuse to use mercury fillings. There is an association setup specifically for dentists that avoid mercury fillings. If not chelation, then perhaps you might read the paper I posted which shows you a home remedy for removing heavy metal toxicity. Certainly worth the read anyway! (http://www.google.ie/url?sa=t&source=web&cd=1&ved=0CBMQFjAA&url=http%3A%2F%2Fwww.neuraltherapy.com%2FNeurotoxinProtocol040406.pdf&ei=R-eTTK2YCMmR4gb0iKXTAw&usg=AFQjCNEsSmG0v33hazGZn9Xf4gFlIdMEkw&sig2=AEIuKm78awRgFTvD_JCCDw)

    I'm not an expert - Just offering my two cents. Worth a shot at least.


  • #40
    joebucks
    Closed Accounts Posts: 728 ✭✭✭joebucks


    dlofnep wrote: »
    Alot of dentists refuse to use mercury fillings. There is an association setup specifically for dentists that avoid mercury fillings. If not chelation, then perhaps you might read the paper I posted which shows you a home remedy for removing heavy metal toxicity. Certainly worth the read anyway! (http://www.google.ie/url?sa=t&source=web&cd=1&ved=0CBMQFjAA&url=http%3A%2F%2Fwww.neuraltherapy.com%2FNeurotoxinProtocol040406.pdf&ei=R-eTTK2YCMmR4gb0iKXTAw&usg=AFQjCNEsSmG0v33hazGZn9Xf4gFlIdMEkw&sig2=AEIuKm78awRgFTvD_JCCDw)

    I'm not an expert - Just offering my two cents. Worth a shot at least.

    Much appreciated man. I'll give that a read. Thanks for your advice. Maybe I'll try chelation at a later point myself. As you say It's worth a shot. Cheers.


  • #41
    Jim
    Registered Users Posts: 14,181 ✭✭✭✭Jim


    Might be possible you have a yeast infection such as candida? Or perhaps "leaky gut" syndrome?


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  • #42
    dlofnep
    Closed Accounts Posts: 20,759 ✭✭✭✭dlofnep


    No Jim :)


  • #43
    LegacyUser
    Registered Users Posts: 166,026 ✭✭✭✭LegacyUser


    Sounds psychological I'm afraid. Point of physical presentations of psychological illness is that you present without any clear idea you actually do have psychological illness. If physical tests are negative, that should say something. I doubt an infectious disease specialist is going to do anything unless these 'fevers' have been consistently shown in testing, in which case you would have been admitted to hospital by your GP at some point.


  • #44
    dlofnep
    Closed Accounts Posts: 20,759 ✭✭✭✭dlofnep


    tom23 wrote: »
    Sounds psychological I'm afraid. Point of physical presentations of psychological illness is that you present without any clear idea you actually do have psychological illness. If physical tests are negative, that should say something. I doubt an infectious disease specialist is going to do anything unless these 'fevers' have been consistently shown in testing, in which case you would have been admitted to hospital by your GP at some point.

    it's not psychological.


  • #45
    Bidd
    Registered Users Posts: 45 ✭Bidd


    Have you seen a Rheumatologist or/and a Neurologist?


  • #46
    dlofnep
    Closed Accounts Posts: 20,759 ✭✭✭✭dlofnep


    Bidd wrote: »
    Have you seen a Rheumatologist or/and a Neurologist?

    I saw a Rheumatologist about 3 years ago.


  • #47
    LegacyUser
    Registered Users Posts: 166,026 ✭✭✭✭LegacyUser


    Sorry to hear you are feeling unwell.
    I can only relate too well.
    Have you thought about getting re-tested for Lyme, if you have been infected for a long period of time you will no longer produce the antibiodies that show up on the bog standard test. You will need to get an Elisa blot test.

    It sounds very like Lyme. But it is a difficult thing to treat.


    And I wouldn't buy into this nonsense that if everything comes up fine on tests then your problems are 'psychological'. Its a handy card like to play.
    Western Medicine is not as advanced as thought by many and there are so many things yet unknown. Doctors are full of unfounded elitism and in my opinion fail miserably at being health care givers in our society.

    Hope you feel better soon.


  • #48
    dlofnep
    Closed Accounts Posts: 20,759 ✭✭✭✭dlofnep


    Saw an infectious disease specialist a few weeks ago. Going back in 2 weeks. Will see then. She gave me the old "it could be psychological" mantra also. Wasting my time if that's all they have to say tbh. Will let you know how it goes :)


  • #49
    Beingolderis better
    Closed Accounts Posts: 19 ✭Beingolderis better


    cocograce wrote: »
    Sorry to hear you are feeling unwell.
    I can only relate too well.
    Have you thought about getting re-tested for Lyme, if you have been infected for a long period of time you will no longer produce the antibiodies that show up on the bog standard test. You will need to get an Elisa blot test.

    It sounds very like Lyme. But it is a difficult thing to treat.


    And I wouldn't buy into this nonsense that if everything comes up fine on tests then your problems are 'psychological'. Its a handy card like to play.
    Western Medicine is not as advanced as thought by many and there are so many things yet unknown. Doctors are full of unfounded elitism and in my opinion fail miserably at being health care givers in our society.

    Hope you feel better soon.
    I agree with you that western doctors can be 'arrogant', and don't like
    to be questioned.


  • #50
    Beingolderis better
    Closed Accounts Posts: 19 ✭Beingolderis better


    dlofnep wrote: »
    Saw an infectious disease specialist a few weeks ago. Going back in 2 weeks. Will see then. She gave me the old "it could be psychological" mantra also. Wasting my time if that's all they have to say tbh. Will let you know how it goes :)

    If you had been in contact with animals ,during a period of 'low'
    immunity,they could have given you their 'parasites'.
    To get rid of them ,eat lots of Raw garlic ,as strong as possible[with potato],or something similiar,also raw onion.

    When you are going out and don't want to 'stink',take tea tree oil in water,regularly.
    If this is the case,as they are dying off,you will feel 'bad',but it will pass quickly.
    Also take a shower when you come home ,not going out.

    Could you let me know if it has helped ?


  • #51
    johnboysligo
    Closed Accounts Posts: 388 ✭✭johnboysligo


    dlofnep wrote: »
    She gave me the old "it could be psychological" mantra also. Wasting my time if that's all they have to say tbh. Will let you know how it goes :)

    You would be surprised how much of and effect your mind can have on your overall health.

    Ever get really stressed at home or school/work then think to yourself "all I need now is another bout of illness" and then suddenly get sick? If you've tired every other medical profession ( traditional and non traditional ) you shouldn't rule out visiting a psychological professional just to tick something else off your list.
    Cant hurt to explore some of that route? Whats the worst that could happen? You get a psychological telling you that you don't have a psychological problem?

    Either way hope you get help for your condition.


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  • #52
    dlofnep
    Closed Accounts Posts: 20,759 ✭✭✭✭dlofnep


    I'm not stressed. It's not stress related. I get ill regardless of my mental levels.


  • #53
    NellieEyes
    Closed Accounts Posts: 1 ✭NellieEyes


    Hi - I just wanted to clarify something with you - you mention that your lupus test came back negative.

    However, there is no definite test for lupus, it is diagnosed through a mixture of symptoms and bloodwork. What I think you may be referring to is an ANA test, however this is only positive in 95% of people with lupus, so if you are discounting lupus based on this you may need to do some further investigation as I know lots of people who discounted lupus based on this, but had it all along.

    I have lupus which is an autoimmune illness and I see a rhuematologist that specialises in connective tissue disorders. I know of other patients who see immunologists (though not sure about how many of these are in Ireland).

    Hope this is of some use


  • #54
    Beingolderis better
    Closed Accounts Posts: 19 ✭Beingolderis better


    dlofnep wrote: »
    I'm not stressed. It's not stress related. I get ill regardless of my mental levels.

    Having read what you have described,I don't think it sounds at all
    mental?
    You sound very sane to me.
    Will you be trying the anti- parasite diet , which I have recommended. It is worth a try,if only to rule out that possibility ?


  • #55
    TrollHammaren
    Registered Users Posts: 651 ✭✭✭TrollHammaren


    Hi OP,

    That just sounds awful - I'd really like to hear how you're getting on.

    I'm not going to throw any potential diagnoses at you, or start asking questions that I imagine enough doctors have covered a millions times - there's nothing worse!

    You mentioned that you're not entitled to Disability Allowance due to a lack of a clear diagnosis, but to what extent have you explored that avenue? There's a sample application form on the citizeninformation website http://www.citizensinformation.ie/en/social_welfare/social_welfare_payments/disability_and_illness/disability_allowance.html and it does ask for a diagnosis as per the ICD10, but there is a section for your doctor to give details. If they reject it on the grounds of lack of medical evidence, you may be able to appeal it. I'm sure your doctor can verify that although medical investigations have come up short, the symptoms of this unknown illness significantly impede your ability to carry out your work to the full extent.

    A welfare officer can deal with these things on a case by case basis (I was granted Orphan's Allowance despite the fact that both my parents are still alive - it was a case of proving parental abandonment, which was difficult to do). I would encourage you to give it a try, as it would mean that money would be one less thing to worry about.

    I hope this helps in some way, and I wish you the very best of luck with your health.


  • #56
    sam34
    Closed Accounts Posts: 8,073 ✭✭✭sam34


    ok, again, can people PLEASE steer clear of suggesting/ruling out potential diagnoses


  • #57
    dlofnep
    Closed Accounts Posts: 20,759 ✭✭✭✭dlofnep


    Hi TrollHammaren,

    I will have a look into it - thanks :) I'm currently working 20 hours a week, as I don't want to fall into a routine of staying at home all day. It is a chore though, and some days can be very tough. I try my best. I'm giving it 2 or 3 months down the route of a infectious disease specialist, but if that fails - I may very well need to accept benefit.

    I am very concerned however with the forthcoming budget that such benefits will be even tougher to get. I will see how it goes. If I had even 6 months to a year off to try and re-coop, and try every possible avenue - I think it would help.

    It is becoming unbearable at this point. I graduated from college this year, and these are the most important years of my life and I want to do something productive with them and enjoy myself instead of being sick all the time, so I'm running out of time before I lose all hope :\ Still, I'll keep on trucking.

    Beingolderis better - I will take a look at it - Thank you. Although, I have tried garlic capsules before for a few weeks without any change. I have a cat and a dog at home.. beyond that I haven't been near any other animals. Funnily enough, all the doctors seem to ask this question also.


  • #58
    Piri
    Registered Users Posts: 225 ✭✭Piri


    Take a complete parasite killing cure with herbal kit like this: http://cgi.ebay.co.uk/Parasite-Cleanse-Kit-Dr-Hulda-Clark-Parasite-Protocol-/250511336461?pt=UK_Health_Beauty_Natural_AlternativeTherapies&hash=item3a53a3a40d#ht_2415wt_754
    Do a dental scan and remove all metal from your mouth


  • #59
    dlofnep
    Closed Accounts Posts: 20,759 ✭✭✭✭dlofnep


    Have to defer my appointment for tomorrow - Damn snow :(


  • #60
    kowloon
    Registered Users Posts: 13,264 ✭✭✭✭kowloon


    dlofnep wrote: »
    Have to defer my appointment for tomorrow - Damn snow :(

    Think I'm in the same boat as yourself but I'm thrilled as I was dreading my appointment!


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  • #61
    dlofnep
    Closed Accounts Posts: 20,759 ✭✭✭✭dlofnep


    Will see how it goes.. Got a quick re-schedule on the 16th :)

    It's my birthday today. Wasn't feeling the best, but kept drinking beers until I drank the pain away. Had a good night. First time since last New Years.


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