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smelly sock · 04-07-2012, 10:12

Well done. At long last!!

I have been chasing it up everyday with a lot of people both in the department and in my local community. Should have an answer within 10 weeks hopefully. I have a letter now saying from my childs early interventing team that he needs the extra care and attention and that they also fully support the request for dca.

I mean, the kid has been diagnosed with a profund intellectual disability. Not mild ,not severe, but profund.

It's just blatantly clear that they are denying people what they are entitled to. And it sickens me.

smelly sock · 04-07-2012, 10:27

The dept. has pretty much said that they can see it's clear my son needs extra care and attention but they feel due to the lack of medical evidence that they think he doesn't need substantially extra care and attention.

Jasssss · 29-08-2012, 09:49

Smellysocks, you need to get to a child pediatrician or consultant in a hospital who can do up a report on your child.In my experience i too sent in OT,Speech Therapy reports etc however they were not worth the paper they were written on.It was only after getting refused once and then on appeal again and really at the stage where i could take no more that my GP referred to a consultant who assessed my child fully .It was only then that i received the Dom.Over the years i too like many parents had spent all of my savings on reports so that my child could access the treatment he needed. Dont waste any more time going around in circles get your Doctor to refer you is my advice.

smelly sock · 29-08-2012, 10:33

Hi Jass. Thanks very much. Got approved for the dca last month!! So happy days.

Just waiting on the carers allowance now. Fun and games.

Thanks for the advice though.

Jasssss · 29-08-2012, 11:05

Ah Smellysock thats great.Now dont get me started on the Carers Allowance.I am now on week 30 and was told to add another 12 to that yesterday when i rang.But good luck.

lionheart09 · 31-08-2012, 16:19

Quote:

Originally Posted by smelly sock

The dept. has pretty much said that they can see it's clear my son needs extra care and attention but they feel due to the lack of medical evidence that they think he doesn't need substantially extra care and attention.

hi, i have been following this board for some time now but never messaged anyone. i applied for Dom,s on 5th july and received a letter last week with a refusal which said exactly the same as your letter. my son has autism and was wondering what you did on your appeal that you were granted next time round. i have been taking advice from everyone when i applied by writing the daily routines etc. i am now waiting for letters from people stating his does need the extra care, is there anything else i need to do any advice is great thanks

nowyouresix · 31-08-2012, 20:06

lionheart: request an interview on appeal, and bring your child. When I applied, I brought my autistic child to the interview, he created havoc in the waiting room, and practically wrecked the office- just the type of stuff he was doing at home, and was accepted.
Good luck

lionheart09 · 01-09-2012, 11:26

hi nowyoursix
thanks for your input i have spoken to my local TD and they have said when i have the letters from everyone that to contact him again and they will request the oral for me and will certainly bring my son as there won't be an office left after we are done

nowyouresix · 01-09-2012, 13:27

Best of luck lionheart

smelly sock · 03-09-2012, 10:28

Get onto Joan Burtons constituency office as well. Email them and tell them what your gonig through each day. Also get you local td's involved as well.

Most importantly get his therapists etc. to specifically request the dca.

This is exactly what I done after the initial rejection.

Best of luck.

lionheart09 · 03-09-2012, 16:43

Quote:

Originally Posted by smelly sock

Get onto Joan Burtons constituency office as well. Email them and tell them what your gonig through each day. Also get you local td's involved as well.

Most importantly get his therapists etc. to specifically request the dca.

This is exactly what I done after the initial rejection.

Best of luck.

thanks for your advice i will do exactly that i am seeing my own local TD this week and waiting letters from all therapist and doctors so hopefully all will go well fingers crossed

daretodream · 04-10-2012, 23:23

Quote:

Originally Posted by Jasssss

Ah Smellysock thats great.Now dont get me started on the Carers Allowance.I am now on week 30 and was told to add another 12 to that yesterday when i rang.But good luck.

No way. Hv only just applied for CA (hv DCA already) but barely surviving as is.

smelly sock · 10-10-2012, 15:24

Quote:

Originally Posted by daretodream

No way. Hv only just applied for CA (hv DCA already) but barely surviving as is.

Just keep fighting. It's never ending. We eventually got approved for the DCA on appeal after getting letters from therapists etc specifically requesting the DCA. We are now waiting for the carers allowance and are being told of waiting times of up to 45 weeks.

smelly sock · 10-10-2012, 15:49

Well,

I just just rang the section.

An average waiting time of 24 - 28 weeks for new applications and renewals.

How long are people waiting here?

lionheart09 · 25-10-2012, 11:37

hi all just to let you know been refused domiciliary again but have appealed told i could be waiting over 12 months for decision

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04-07-2012, 10:12	#46
smelly sock Registered User Join Date: Feb 2010 Posts: 383 Adverts \| Friends	Well done. At long last!! I have been chasing it up everyday with a lot of people both in the department and in my local community. Should have an answer within 10 weeks hopefully. I have a letter now saying from my childs early interventing team that he needs the extra care and attention and that they also fully support the request for dca. I mean, the kid has been diagnosed with a profund intellectual disability. Not mild ,not severe, but profund. It's just blatantly clear that they are denying people what they are entitled to. And it sickens me.

04-07-2012, 10:27	#47
smelly sock Registered User Join Date: Feb 2010 Posts: 383 Adverts \| Friends	The dept. has pretty much said that they can see it's clear my son needs extra care and attention but they feel due to the lack of medical evidence that they think he doesn't need substantially extra care and attention.

29-08-2012, 09:49	#48
Jasssss Registered User Join Date: Aug 2011 Posts: 101 Adverts \| Friends	Smellysocks, you need to get to a child pediatrician or consultant in a hospital who can do up a report on your child.In my experience i too sent in OT,Speech Therapy reports etc however they were not worth the paper they were written on.It was only after getting refused once and then on appeal again and really at the stage where i could take no more that my GP referred to a consultant who assessed my child fully .It was only then that i received the Dom.Over the years i too like many parents had spent all of my savings on reports so that my child could access the treatment he needed. Dont waste any more time going around in circles get your Doctor to refer you is my advice.

29-08-2012, 10:33	#49
smelly sock Registered User Join Date: Feb 2010 Posts: 383 Adverts \| Friends	Hi Jass. Thanks very much. Got approved for the dca last month!! So happy days. Just waiting on the carers allowance now. Fun and games. Thanks for the advice though.

29-08-2012, 11:05	#50
Jasssss Registered User Join Date: Aug 2011 Posts: 101 Adverts \| Friends	Ah Smellysock thats great.Now dont get me started on the Carers Allowance.I am now on week 30 and was told to add another 12 to that yesterday when i rang.But good luck.

31-08-2012, 20:06	#52
nowyouresix Closed Account Join Date: Nov 2011 Posts: 197 Adverts \| Friends	lionheart: request an interview on appeal, and bring your child. When I applied, I brought my autistic child to the interview, he created havoc in the waiting room, and practically wrecked the office- just the type of stuff he was doing at home, and was accepted. Good luck

01-09-2012, 11:26	#53
lionheart09 Registered User Join Date: Aug 2012 Posts: 10 Adverts \| Friends	hi nowyoursix thanks for your input i have spoken to my local TD and they have said when i have the letters from everyone that to contact him again and they will request the oral for me and will certainly bring my son as there won't be an office left after we are done

01-09-2012, 13:27	#54
nowyouresix Closed Account Join Date: Nov 2011 Posts: 197 Adverts \| Friends	Best of luck lionheart

03-09-2012, 10:28	#55
smelly sock Registered User Join Date: Feb 2010 Posts: 383 Adverts \| Friends	Get onto Joan Burtons constituency office as well. Email them and tell them what your gonig through each day. Also get you local td's involved as well. Most importantly get his therapists etc. to specifically request the dca. This is exactly what I done after the initial rejection. Best of luck.

10-10-2012, 15:49	#59
smelly sock Registered User Join Date: Feb 2010 Posts: 383 Adverts \| Friends	Well, I just just rang the section. An average waiting time of 24 - 28 weeks for new applications and renewals. How long are people waiting here?

25-10-2012, 11:37	#60
lionheart09 Registered User Join Date: Aug 2012 Posts: 10 Adverts \| Friends	hi all just to let you know been refused domiciliary again but have appealed told i could be waiting over 12 months for decision