[byhookorbycrook]

Gilenya has been made available to a small no. of people with MS in Ireland, so worth chasing that down.

[coughdrops]

Had my appointment today, and was in and out pretty quick. I realise some people don't like short appointments, but I do (unless I have a problem / query which I didn't today thankfully!)

They did a test on my hands, right vs left, putting pegs in the board. Haven't had that done before. Just highlighted to me how my right hand has lost dexterity- fumbled a bit witht the pegs. Was better with my left hand, although I am right handed. The MS doesn't really affect the left, typical!

Anyway that's the update post-SVUH!

CD

[coughdrops]

How is everyone this morning? Had a long busy week at work last week, and I am still very tired from it.

Do any of you take vitamin / tonic supplements to help with energy levels?

[byhookorbycrook]

I take omega oils, vit b, d, c and from time to time something like Vivioptal.Fatigue in MS is like no other kind, it really gets into your bones.I try to store up sleep, if I know I have an especially busy time ahead.

[outnumbered82]

I take amantadine for fatigue. I did try all the vitamin supplements but they didnt work

[bnt]

A story all over the entertainment news today, e.g. People magazine, suggests that we may have a new celebrity MS spokesperson: Jack Osbourne, son of Ozzy and Sharon, star of The Osbournes. The publicity is useful, I suppose.

[coughdrops]

After a weekend of feeling bad, this morning I feel awful. Fatigue has hit me like a bus. I could cry with tiredness, and would love another day in bed - slept away most of yesterday- but don't think the boss would be too happy

[outnumbered82]

Coughdrops you poor thing i hate the fatigue i didnt think i was tired this weekend but ended up in bed all day yesterday it really hit me after a busy weekend when everything settled down how tired i was. This morning i was up early but had recharged enough to get through the day, i even sat out in the sun for a while in the afternoon getting some well earned vitamin d!!

[Fighting Irish]

http://www.facebook.com/notes/ccsvi-...50960894457211

Interesting read
Has anyone here had CCSVI treatment? Where and at what cost?

[byhookorbycrook]

It has been largely discredited, I'd stay well clear. I'd prefer something like Campath.

[Denise75]

Hi I'm new to this site as it was recomended by a friend. I'm in my early 30's and faced with the probability of having MS. I wonder if anyone could give me some advice as the unknown waiting is the worst feeling at the moment. About 2 yrs ago i lost sensation on the left side of my face and was sent for an MRI scan on the brain. I never recovered the sensation, all feels cold especially my mouth area and pain around eye and head area sometimes. About 4 to 5 weeks ago I developed swelling in both legs with pain down right arm and was sent to casualty by GP. I couldn't pass water for hours but doctors said couldn't find anything wrong and sent me home. 4 days later I was back to casualty with a severe pain down left arm and hand swollen. I explained to doctors the pain was like electricity going down my arm. My legs had a stiff or tight feeling that wouldn't go away, my right leg being worse than left. My GP said come back in a week or two if swelling didn't disappear. It reduced but other symptoms didn't disappear. I forgot to say I had numbness in smaller fingers but feeling returned.
I have an appointment to see a Neurologist in Dublin next month and the appointment can't come fast enough as I feel the symptoms are getting worse, maybe I'm worring too much but It's hard not to. I now have the pins and needles sensation in back of hands and yesterday got a severe burning sensation down the left arm. My legs I imagine are getting stiffer by the day.
I know It hasn't been verified that it is MS but a student doctor said it's either nerve damage or ms straight to my face, my GP was outraged by this but said I do have a lot of the symptoms similar to MS and so did a person I asked when I enquired with the MS society of Ireland. I'm pretty prepared for the obvious but can't stop crumbling and breaking down every so often especially at work.
Can anyone give me some words of advice in how to tackle this. From what I read everyone's condition different. One thing going for me is the previous MRI scan didn't show anything but a lot has changed since then!!

[val444]

Hi Denise75.

We can't give medical advice, and I am not even going to try and tell you what might be wrong. I could try and reassure you, but I don't think anything is going to calm you down at the moment. All I can say is that if it is MS, you are doing the right thing by pursuing it with a neurologist.

It is difficult, especially with symptoms like you are experiencing, but the best thing you could do right now is put any worries about MS or anything else, out of your head, and just concentrate on looking after yourself.

Another suggestion I found helpful is to write down any weird symptoms you have ever had, make an exhaustive list to show the neurologist, and then forget about it until your appointment.

Easier said than done, I know.

[ANXIOUS]

Is swelling in the limbs a sign of ms for people here?

[outnumbered82]

There are many symptons to ms. If you are worried about any symptons you might have you should go to your doctor

[ANXIOUS]

Originally Posted by outnumbered82

There are many symptons to ms. If you are worried about any symptons you might have you should go to your doctor

Oh sorry no I don't think I have it, I'm just wondering if people that have been diagnosed have noticed there limbs would swell.