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07-01-2012, 23:00   #106
MarthaMyDear
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Hope everyones doing ok. I've been taking the Feminex like there's no tomorrow! I find it's the only thing working at the moment.
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11-01-2012, 15:33   #107
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I never found Feminex any use, and I've a codeine intolerance so pretty much stuck with regular ibuprofen. The pain wasn't too bad in the end when it actually showed up, albet 2 days late which resulted in a bit of panic.

I've really cut back on milk and bread over the last 3 months and found that it seems to be helping. Has anyone else tried this?
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12-01-2012, 21:11   #108
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No I havn't tried that! I think I will though, I heard cutting out dairy is good but I eat a lot of cheese don't know if I could survive without it

I went back to my consultant last month, he said to take the pill 3 months straight at a time to give myself a break from the pain but decided against it this month. I didn't get my period this month though? Just never came! Have had mild-ish cramps and back pain literally all month but no sign of it and was due nearly 2 weeks ago??

Kinda wondering why, can't be anything baby related unless it's a baby jesus because I havn't been able to do anything like that for months with my boyfriend due to the endo He'll get sick of me soon!!!
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13-01-2012, 08:53   #109
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I was taking it for 3 months straight last year and found myself getting very agitated about halfway through the third pack so just went back to 2 packs straight. Sometimes all the changing about of the amount of hormones can make it not show up so I wouldn't worry too much about that! : D

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Kinda wondering why, can't be anything baby related unless it's a baby jesus because I havn't been able to do anything like that for months with my boyfriend due to the endo He'll get sick of me soon!!!
Sucks doesn't it? My relationship just ended and while those things were brilliant with him I'm, not entirely sure he completly understood how painful it could be, and had been in the past. Kinda hard for guys to grasp the idea of incredibly painful sex I think
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16-01-2012, 19:39   #110
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I had a laparoscopy last week and have been reading up on how your diet can help/worsen the symptoms of endometriosis. Apparently wheat, dairy and sugar are the big ones to try and cut out. Have been avoiding wheat for nearly 2 months now and personally I find that's helped me quite a bit. Trying to lose the sugar addiction will be harder!
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21-01-2012, 23:58   #111
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Endometriosis specialist?

Hi, I'm looking for name of a gyn that has good experience treating endometriosis in a conservative manner (.i.e. priority on preserving fertility).

Anyone have someone they got on well with? please PM me details if you do - it would be much appreciated.

My wife was diagnosed via laproscopy recently - not really confident in the person we are with at the moment...
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23-01-2012, 11:56   #112
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Sucks doesn't it? My relationship just ended and while those things were brilliant with him I'm, not entirely sure he completly understood how painful it could be, and had been in the past. Kinda hard for guys to grasp the idea of incredibly painful sex I think
Yeah, it really is hard. It's been so long since we've been able to anything and although he's very understanding he does get frustrated.
He's probably sick of me saying I have cramps too, he must internally roll his eyes every time I say it!
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27-01-2012, 01:34   #113
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Dr.Mary Wingfield in Holles Street is an endo specialist and also works in de merrion clinic,i know she is gud wit de endo but ive also heard lots of people praising her wen dey hav had problems conceiving
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27-01-2012, 16:46   #114
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HI All,

Personally, I always more or less add pains (periods cramps, back pains, bowel movement pains). however these pains got worse the last 2 years and i was doing multiple infections (UTI, kidneys and pelvic infections). All my symptoms worsen when i stop the pill. After multiple smear and test done which always came back normal, a female GP in rathfarnham mentioned endometriosis to me and put me back on contraceptive pill to treat it. However in November 2011, my back got blocked and i handed up in the Beacon emergency room. An MRI of my lower back was made which showed again nothing. So i decided to mention the requirements of a Gyneocologist consultation for possible endometriosis during my time there.

In december, I was diagnosed with a stage 4 endometriosis with adhesions to rectum during a laparoscopy at the beacon hospital (Sandyford).I already received my decapetyl injection, and I am scheduled for another laparoscopy in April to try to remove as much as possible.

Does anybody know or heard of DR Prendeville at the beacon as he will be my surgeon? I heard that he is good but just want to have ur opinion.

Also a lot of the questions going around my head these days are, what are my chances to conceive after the op? natural conception or IVF? what s your experiences?
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31-01-2012, 21:05   #115
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From what I've read I believe your chances of conception seem to be increased during the 6-9 months immediately following the laparoscopy. A girl I know recently became pregnant 2 months after her laparoscopy and a colleague's daughter is pregnant one month post-op. I know the endometriosis can reoccur in a high percentage of people, but I believe an endometriosis-friendly diet can help your chances of conceiving naturally. I don't know much about IVF but I know there are a number of endo-related posts in the Assisted Reproduction thread in the Trying to Conceive forum and they would know more about it over there!

Last edited by Sinall; 31-01-2012 at 21:10.
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03-03-2012, 11:05   #116
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Hey all,

Anyone heading to the Endo information day in Lucan next Saturday?
http://www.endo.ie/
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05-03-2012, 10:56   #117
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Hey all,

Anyone heading to the Endo information day in Lucan next Saturday?
http://www.endo.ie/
ohh I may go to that! Thanks
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04-04-2012, 13:15   #118
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I went to a nutritionist on Monday, who specialises in endometriosis diets. It was really interesting and there was lots of information to take in. I filled in a questionnaire and was given lists of foods to avoid and lists of foods to increase, as well as supplements to take for a few months, until I start to sort my diet out. Feel free to PM me for further info. I went to see this lady in London, but she also does telephone consultations if anyone is interested. Will let you know how I get on and if it makes a difference!
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04-04-2012, 23:55   #119
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hows everyone doing? I finally got some new painkillers that are helping

Ponstan Forte and Ixprim, anyone on either? The ponstan are grand they take the edge off I've only taken one of the Ixprim and they seem really strong!!
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05-04-2012, 11:09   #120
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I've been on Ixprim for the last 3 weeks (6 tabs a day) as I've had constant severe pain in my right abdomen for the last 6 weeks!. Went to Holles st. about a month ago as I though it might have been a cyst and the did a scan, everything was textbook perfect so they said it wasn't a gyny problem. A week later I went to Naas A&E as I was in agony and wasn't eating, GP though it might be appendix so of I went to sit on a trolley for 36 hours to have another ultrasound. Told everything was fine and that it was probably the endo and go back to my gyny, even tho she was unwilling to go in and have a look after the scan was clear.

Went to the A&E in the Hermitage after that, they did a CT scan which was also normal. The doc there put me on Ixprim and Vimovo. He thought I might have Chron's or IBS even tho I have zero bowl problems!

So long story short I wnt to see a gastro/general surgeon who operated on my before and he's preforming another laprascopy on Wednesday. I hope he finds something, or sorts out the existing adhesions that are present. I had to miss 3 weeks of work from this and its impacting my life. The painkillers take the edge off but I have to take them every 6 hours nearly or the pain shows back up. Sorry for the rant guys, I'm all grrr at the moment.
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