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Cochlear Implants

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Comments

  • Banned (with Prison Access) Posts: 8,486 ✭✭✭miju


    shaydy wrote: »
    Anyone with any experience any advice for the first few weeks? My son had no hearing at all prior to switch on so it is and is going to be quite an adjustment for him I'd imagine. He got a fright during his first switch on but was fine after a few seconds once the volume was adjusted

    Most do know my son was same years ago when he was swtiched on. Just let him discover the world of sound for the things we take for granted like toilets flushing and doors closing

    Very best of luck


  • Registered Users Posts: 12 Fat Robot


    Yes. The sound of toilet flushing was our favourite. In the first month after switching on we spent extra 1 m^3 of water just on that.


  • Registered Users Posts: 516 ✭✭✭shaydy


    4 weeks in and all going great, in fact its probably only 3 full weeks given how low the settings were the first week but even still its amazing to see him turn to his name being called or getting excited when i say 'ready steady........go' etc! He's doing great and all the specialists appear to be very happy with his progress so far so fingers crossed that all continues


  • Registered Users Posts: 2,369 ✭✭✭LostBoy101


    Hey guys,
    My implant surgery is scheduled for next Wednesday 27th July, and I'm 18 years of age. I have Severe to Profound hearing loss and when I was younger I used to be around Moderately severe hearing loss.

    What I hope to achieve from this implant is to be able to engage in conservations without relying on my lip reading and to be able to hear on the phone again.

    Anyone like to share their experiences with me?


  • Registered Users Posts: 2,644 ✭✭✭SerialComplaint


    LostBoy101 wrote: »
    Hey guys,
    My implant surgery is scheduled for next Wednesday 27th July, and I'm 18 years of age. I have Severe to Profound hearing loss and when I was younger I used to be around Moderately severe hearing loss.

    What I hope to achieve from this implant is to be able to engage in conservations without relying on my lip reading and to be able to hear on the phone again.

    Anyone like to share their experiences with me?

    Caroline Carswell of Irish Deaf Kids went through this operation recently.

    You could contact her at http://www.irishdeafkids.ie/


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  • Registered Users Posts: 457 ✭✭chainsawman


    LostBoy101 wrote: »
    Hey guys,
    My implant surgery is scheduled for next Wednesday 27th July, and I'm 18 years of age. I have Severe to Profound hearing loss and when I was younger I used to be around Moderately severe hearing loss.

    What I hope to achieve from this implant is to be able to engage in conservations without relying on my lip reading and to be able to hear on the phone again.

    Anyone like to share their experiences with me?

    Hello , im getting a cochlear implant in the summer or autumn this year . How are you getting on since you had it done few years ago ? Im profoundly deaf , i love to hear the music but dont know who sings that song . I love to hear the birds outside etc .


  • Registered Users Posts: 5 misterit


    Hello , im getting a cochlear implant in the summer or autumn this year . How are you getting on since you had it done few years ago ? Im profoundly deaf , i love to hear the music but dont know who sings that song . I love to hear the birds outside etc .

    The new digital devices has many new good features. Need to get use to it.

    You can connect your iPhone with the Cochlear Baha Implant and it is a nice feature. But the battery hold only for 3 days because of Bluetooth Connection.

    I like more the old devices where you could connect a cable to the iPhone. No Bluetooth. Battery hold minimum 2 weeks.

    I use already Cochlear Implants since 23 years. Before I had different systems.

    If you have specific questions just ask.


  • Registered Users Posts: 457 ✭✭chainsawman


    misterit wrote: »
    The new digital devices has many new good features. Need to get use to it.

    You can connect your iPhone with the Cochlear Baha Implant and it is a nice feature. But the battery hold only for 3 days because of Bluetooth Connection.

    I like more the old devices where you could connect a cable to the iPhone. No Bluetooth. Battery hold minimum 2 weeks.

    I use already Cochlear Implants since 23 years. Before I had different systems.

    If you have specific questions just ask.
    Thank you for a swift reply after only posting within an hour myself .
    Questions I like to ask ...

    My left ear is completely dead , my right ear has a very little hearing . Using a hearing aids on my right ear . The implant will be on my right side . They say I will never return to hearing aids ever again after the implant . Do you th8nk it would be better to implant on my left side in case the implant doesn’t go right for me . But the staff said that my left ear is very weak and will not be strong enough to response to the implant ,
    Another thing , how long did you hear the sound after a switch on ? My friend who had an implant few weeks ago , had not hear a sound yet , they say that everyone has different time. Thanks in advance .


  • Registered Users Posts: 5 misterit


    Thank you for a swift reply after only posting within an hour myself .
    Questions I like to ask ...

    My left ear is completely dead , my right ear has a very little hearing . Using a hearing aids on my right ear . The implant will be on my right side . They say I will never return to hearing aids ever again after the implant . Do you th8nk it would be better to implant on my left side in case the implant doesn’t go right for me . But the staff said that my left ear is very weak and will not be strong enough to response to the implant ,
    Another thing , how long did you hear the sound after a switch on ? My friend who had an implant few weeks ago , had not hear a sound yet , they say that everyone has different time. Thanks in advance .

    Do it on the right side because there the hearing organ seems to be perfectly intact.

    The implant will not fail for you. It is just a different kind of hearing because the sound is directly going into the hearing organ via the bone. Not like the hearing aid where the sound will be transported via your ear channel to the hearing organ.

    Which sound do you mean after you switch on the device ?
    When you turn on the device then your hear the boot up sequence. 6x you hear the piep. It is about 20 sec because your system need to boot up ðŸ˜

    I got the device in November 2016 in Cork hospital (SIVUH). They were honest to me and said that I have more experience with the device then they have. Depends on your hearing test they programming the device. I had a bad test so the device was badly programmed. But was also my fault. I pressed on the button when I heated the tone perfectly but here you really need to press when you hear the tone from the first moment. Otherwise you will get crazy what you are hearing. I was flying to Germany and there I was going to audiologist who reconfigured the device. Also he put on 4 programs on the device.
    1. Sound will be adjusted automatically on background noise
    2. Not adjusted
    3. Motorbike. Under helmet you usually have acoustic feedback. With this program this is reduced.
    4. Streaming from Cochlear Wireless Mini Microphone


  • Registered Users Posts: 457 ✭✭chainsawman


    misterit wrote: »
    Do it on the right side because there the hearing organ seems to be perfectly intact.

    The implant will not fail for you. It is just a different kind of hearing because the sound is directly going into the hearing organ via the bone. Not like the hearing aid where the sound will be transported via your ear channel to the hearing organ.

    Which sound do you mean after you switch on the device ?
    When you turn on the device then your hear the boot up sequence. 6x you hear the piep. It is about 20 sec because your system need to boot up ðŸ˜

    I got the device in November 2016 in Cork hospital (SIVUH). They were honest to me and said that I have more experience with the device then they have. Depends on your hearing test they programming the device. I had a bad test so the device was badly programmed. But was also my fault. I pressed on the button when I heated the tone perfectly but here you really need to press when you hear the tone from the first moment. Otherwise you will get crazy what you are hearing. I was flying to Germany and there I was going to audiologist who reconfigured the device. Also he put on 4 programs on the device.
    1. Sound will be adjusted automatically on background noise
    2. Not adjusted
    3. Motorbike. Under helmet you usually have acoustic feedback. With this program this is reduced.
    4. Streaming from Cochlear Wireless Mini Microphone
    Thanks for giving me your well detailed info ,, I’m nervous and excited to get the implant this summer or autumn , even though I’m fairly good speech , I knew that implant will not improve my speech . All I want is to hear different sound and music in which I’m longing and dreamed for .


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  • Registered Users Posts: 5 misterit


    Thanks for giving me your well detailed info ,, I’m nervous and excited to get the implant this summer or autumn , even though I’m fairly good speech , I knew that implant will not improve my speech . All I want is to hear different sound and music in which I’m longing and dreamed for .

    Right decision


  • Registered Users Posts: 7 Macman31


    Hey - just wondering if anyone here has had a BAHA Hearing Aid implanted? I am scheduled to have it done and I am trying to reach someone who I could talk to that already had the surgery.

    I’m not sure if this is right for me and would love to speak to someone to had it done. Thanks!


  • Registered Users Posts: 5 misterit


    Macman31 wrote: »
    Hey - just wondering if anyone here has had a BAHA Hearing Aid implanted? I am scheduled to have it done and I am trying to reach someone who I could talk to that already had the surgery.

    I’m not sure if this is right for me and would love to speak to someone to had it done. Thanks!

    Hi. Read the previous posts from the page 3-4. There you can read about the experience. Let me know if you need more information.


  • Registered Users Posts: 7 Macman31


    Hey - thanks for that advice. I sent you an inbox mail with further questions. Can you take a look at them?


  • Registered Users Posts: 457 ✭✭chainsawman


    Finally getting a Cochlear Implant tomorrow morning at Beaumont Hospital... At the moment , my left ear has only 4% of hearing while the the right has 0% . The implant will be on my left ear . Wish me luck people . Will give you my up to date .


  • Registered Users Posts: 4,138 ✭✭✭realitykeeper


    Thank god for inventing technology!

    Seriously these implants are fantastic for those that really need them

    Not cheap though
    Around 25k
    And only for people with a big hearing loss

    The HSE could do it for free if payment was made per procedure instead of by the hour. Consultants always argue with me whenever I make this point which is further proof (if any were needed) that this must happen. The biggest obstacle at the moment is Simon Harris. Ireland needs a health minister who will bring in this policy. The fact that he hasn`t suggests cluelessness on his part.


  • Registered Users Posts: 457 ✭✭chainsawman


    Finally getting a Cochlear Implant tomorrow morning at Beaumont Hospital... At the moment , my left ear has only 4% of hearing while the the right has 0% . The implant will be on my left ear . Wish me luck people . Will give you my up to date .


    Got my cochlear implant operation cancelled due to my reaction to anesthesia. This type of anesthesia wasn’t suitable for me , so I might have to go back again with a different kind of anesthesia. Wanted to say a big thank you to the team of surgeons and staff at Beaumont Hospital for doing their great job to put my heart back to the heartbeat after it stopped for a few seconds . I was told it was very rare of reaction to anesthesia. Probably 1 out of 10,000 . I feel great now . Obviously disappointed to come home without a cochlear implant but fully understand their decision 100% .


  • Registered Users Posts: 457 ✭✭chainsawman


    Got my cochlear implant operation cancelled due to my reaction to anesthesia. This type of anesthesia wasn’t suitable for me , so I might have to go back again with a different kind of anesthesia. Wanted to say a big thank you to the team of surgeons and staff at Beaumont Hospital for doing their great job to put my heart back to the heartbeat after it stopped for a few seconds . I was told it was very rare of reaction to anesthesia. Probably 1 out of 10,000 . I feel great now . Obviously disappointed to come home without a cochlear implant but fully understand their decision 100% .

    Had done a second chance of Cochlear Implant last week which went successfully. Was given a different type of anesthesia , admitted that I was very nervous of taking the anesthesia second time after went through a flat line experience in the first . Woke up very relieved. But had to stay few more days due to balancing problems possibly a vertigo. Only 9% of the implants got the vertigo problems but most got better within 7-10 days . Mine still have balancing problems , but felt bit better today after doing an excerise from Beaumont Physio . The switch on date will be on 17 th October , will keep it up to date with any news .


  • Registered Users Posts: 465 ✭✭bada_bing


    How's it going with the new implant chainsawman?
    I'm currently through the CI assessment process at Beaumont and will be attending a meeting with other CI users at the end of the month to ask questions and discuss their experiences with them.
    Was born bilaterally deaf but was able to integrate well within a mainstream environment. Unfortunately over the past 10 years my hearing has deteriorated to a level where i'm now recognized as being profoundly deaf and has made it difficult for me to find work in the IT market. I was considered a suitable candidate for the CI programme over 10 years ago but at the time I didn't think it was right for me.
    I've been told that if I do get the implant , the adjustment stage will be much faster for me as I have the experience of being exposed to sounds all my life. I do have a few concerns though and I wonder if things will no longer sound the same after the implant as I've heard that things can sound mechanical/robotic after the implant. Can you advise if that is the case with you?


  • Registered Users Posts: 457 ✭✭chainsawman


    bada_bing wrote: »
    How's it going with the new implant chainsawman?
    I'm currently through the CI assessment process at Beaumont and will be attending a meeting with other CI users at the end of the month to ask questions and discuss their experiences with them.
    Was born bilaterally deaf but was able to integrate well within a mainstream environment. Unfortunately over the past 10 years my hearing has deteriorated to a level where i'm now recognized as being profoundly deaf and has made it difficult for me to find work in the IT market. I was considered a suitable candidate for the CI programme over 10 years ago but at the time I didn't think it was right for me.
    I've been told that if I do get the implant , the adjustment stage will be much faster for me as I have the experience of being exposed to sounds all my life. I do have a few concerns though and I wonder if things will no longer sound the same after the implant as I've heard that things can sound mechanical/robotic after the implant. Can you advise if that is the case with you?


    Sorry for the delay , hasn’t look up at boards.ie for few weeks . Possibly it is because I was too busy with CI experience. You are right about the mechanical/robotic sound after the implant , but get less bit by bit everyday , it is because the brain doesn’t experience the sound before , once you understand where the sound comes from , the brain and the sound is beginning to relate each other with more understanding . Since my 17 th October switch on , that’s 5 weeks ago tomorrow, the mechanical sound got less . I’m very happy with the implant , I was so worried before the switch on , I thought being born deaf , I was destined to stay that way for the rest of my life but sound came on about 10-15 minuted after the switch on , amazing experience, went home by train on that day , it was very mechanical sound all the way home by train (100miles) . When I woke up the next morning , I heard myself breathing for the first time . Also heard the sound that I never heard from my old hear8ng aids , dog walking about , birds singing and screeching, clock ticking , wind blowing . The best of all , was to enjoy the band playing at the pub last week , really really very happy to get the implant , I can’t thank the doctors , surgeons , the staff of CI enough , they are amazing people .. I’m sure yours will be more quicker than me cos you have a bit of experience with the hearing , your brain will be more prepared to it . Best of luck with your forthcoming meetings with CI .


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